Tailoring nutrition and cancer education materials for breast cancer patients

PATIENT EDUCATION AND COUNSELING

卷:105

Article

Melnic, Irina¹  Alvarado, Angelica E.¹  Claros, Maria¹  Martinez, Chanel, I¹  Gonzalez, Javier¹  Gany, Francesca^1,2 

[1] Mem Sloan Kettering Canc Ctr, Immigrant Hlth & Canc Dispar Serv, Dept Psychiat & Behav Sci, 485 Lexington Ave,2nd Floor, New York, NY 10017 USA

[2] Weill Cornell Med Coll, Dept Med, New York, NY USA

关键词: Language;    Literacy;    Nutritional status;    Breast neoplasms;    Nutrition;    Comprehension;    Hispanic Americans;    Minority groups;    Emigrants and immigrants;    Curriculum;    Cultural competency;    Education;    Patient;   

DOI  :  10.1016/j.pec.2021.05.040

来源: Elsevier

【 摘 要 】

Objective: Many breast cancer patients are vulnerable to poor nutritional status and may benefit from nutrition education, but existing materials are not generally tailored to the needs of low-literacy immigrant and minority patients. Methods: With nutritionist guidance, we developed a nutrition presentation for breast cancer patients. English- (n = 29) and Spanish-speaking (n = 19) patients were recruited from 5 safety-net hospitals, an academic cancer center, and a Latina cancer support organization. Materials were tested using multiple rounds of cognitive interviewing (with an adapted USDA interview guide), followed by study team reviews and modifications, until saturation. Results: Seven rounds of interviews per language were needed. Approximately 25% of interviewees had less than a high school education. Changes included adapting to regional lexicons and resolving vague/confusing phrasing. Specific food examples needed cultural tailoring. Text color coding (red/bad, green/good) was requested. Labeled images enhanced participants' understanding of concepts. Spanish speakers expressed a desire to understand nutrition labeling, and this was emphasized in the Spanish slides. Conclusion: Cognitive interviews were an important tool for creating a nutrition curriculum tailored to the needs of low-literacy, mostly immigrant patients. Practice implications: Cultural and linguistic factors should be considered for nutritional education materials in diverse patient populations.

【 授权许可】

Free