Endometrial cancer survivors are unsatisfied with received information about diagnosis, treatment and follow-up: A study from the population-based PROFILES registry

PATIENT EDUCATION AND COUNSELING

卷:88

Article

Nicolaije, Kim Agnes Helma¹  Husson, Olga¹  Ezendam, Nicole Paulina Maria¹  Vos, Maria Caroline²  Kruitwagen, Rutgerus Franciscus Petrus Maria^3,4  Lybeert, Marnix Lodewijk Maria⁵  van de Poll-Franse, Lonneke Veronique¹ 

[1] Tilburg Univ, CoRPS Ctr Res Psychol Somat Dis, Dept Med Psychol & Neuropsychol, NL-5000 LE Tilburg, Netherlands

[2] St Elizabeth Hosp, Dept Obstet & Gynecol, Tilburg, Netherlands

[3] Maastricht Univ Med Ctr, Dept Gynecol, Maastricht, Netherlands

[4] Maastricht Univ Med Ctr, GROW Sch Oncol & Dev Biol, Maastricht, Netherlands

[5] Catharina Hosp, Dept Radiotherapy, Eindhoven, Netherlands

关键词: Endometrial cancer;    Cancer survivors;    Information provision;    Information satisfaction;    Population-based;    PROFILES registry;   

DOI  :  10.1016/j.pec.2012.05.002

来源: Elsevier

【 摘 要 】

Objective: To evaluate perceived level of and satisfaction with information received by endometrial cancer survivors, and to identify associations with socio-demographic and clinical characteristics. Methods: All patients diagnosed with endometrial cancer between 1998 and 2007, registered in the Eindhoven Cancer Registry, received a questionnaire including EORTC-QLQ-INFO25. Results: Seventy-seven percent responded (n = 742). Most patients indicated receiving quite a bit information about their disease and medical tests. However, most patients were not (54%) or a little (24%) informed about the cause of their disease, and possible side effects (36%; 27%). Especially information about additional help, rehabilitation, psychological assistance, and expected results on social and sexual life was lacking. Five percent was not or a little (36%) satisfied. Four percent found the information not or a little (35%) helpful. Fifteen percent preferred more information. Younger age, more recent diagnosis, radiotherapy, absence of comorbidities, having a partner, having received written information, and higher educational level were associated with higher perceived information receipt. Conclusion: Many endometrial cancer survivors are unsatisfied with received information. Several areas of information provision are experienced as insufficient. Practice implications: More patient-tailored information is probably needed to provide optimal information. Implementation of Survivorship Care Plans might be a way to achieve this. (C) 2012 Elsevier Ireland Ltd. All rights reserved.

【 授权许可】

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