期刊论文详细信息
PATIENT EDUCATION AND COUNSELING 卷:104
Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial
Article
van der Heide, Iris1  van Wezel, Nienke2  Blom, Marco2  Spreeuwenberg, Peter1  Deville, Walter L. J. M.1,3,4  Francke, Anneke L.1,5 
[1] Netherlands Inst Hlth Serv Res, Nivel, POB 1568, NL-3500 BN Utrecht, Netherlands
[2] Alzheimer Nederland, Amersfoort, Netherlands
[3] Univ Amsterdam, Fac Social & Behav Sci, Amsterdam, Netherlands
[4] Univ Med Ctr, Julius Ctr Hlth Sci & Primary Care, Utrecht, Netherlands
[5] Vrije Univ Amsterdam, Amsterdam Publ Hlth Res Inst, Dept Publ & Occupat Hlth, Amsterdam, Netherlands
关键词: Educational intervention;    Family care;    Turkish immigrants;    Moroccan immigrants;    Dementia;    Health-related quality of life;    Cluster randomised control trial;   
DOI  :  10.1016/j.pec.2020.10.029
来源: Elsevier
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【 摘 要 】

Objective: Gaining understanding of the health-related quality of life (HRQL) of family caregivers of people with dementia with Turkish or Moroccan immigrant backgrounds and to examine whether an educational peer group intervention can improve HRQL. Methods: Understanding of HRQL and associated variables was obtained by multiple linear regression analyses. The effects of the intervention on HRQL were assessed in multilevel analyses using data collected before the start (baseline), directly after the intervention (one to two weeks after baseline) and three months after the start of the intervention. The intervention (two interactive group sessions) entailed providing information about dementia and care/support options. Results: At baseline (n = 319), HRQL was moderately and significantly associated with migration background, gender, self-perceived pressure from informal care and the formal and informal support received (p < .05). The intervention had a small effect on emotional wellbeing directly after the intervention (p < .05) and on perceived general health status three months after (p < .05). Conclusion: Culturally sensitive peer group education on dementia and care/support options can to some extent enhance HRQL among family caregivers in the short term. Practice implications: The intervention as described in this study is recommended for supporting family caregivers of people with dementia with Turkish or Moroccan backgrounds. (c) 2020 Elsevier B.V. All rights reserved.

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