Tailoring the amount of treatment information to cancer patients' and survivors' preferences: Effects on patient-reported outcomes

PATIENT EDUCATION AND COUNSELING

卷:103

Article

Lehmann, Vicky¹  Labrie, Nanon H. M.^1,2  van Weert, Julia C. M.³  van Dulmen, Sandra^4,5,6  de Haes, Hanneke J. C. J. M.¹  Kersten, Marie Jose⁷  Pieterse, Arwen H.⁸  Smets, Ellen M. A.¹ 

[1] Univ Amsterdam, Canc Ctr Amsterdam, Amsterdam Publ Hlth Res Inst, Dept Med Psychol,Amsterdam Univ Med Ctr, Amsterdam, Netherlands

[2] Vrije Univ Amsterdam, Fac Sci, Athena Inst, Amsterdam, Netherlands

[3] Univ Amsterdam, Amsterdam Sch Commun Res ASCoR, Amsterdam, Netherlands

[4] Nivel Netherlands Inst Hlth Serv Res, Utrecht, Netherlands

[5] Radboud Univ Nijmegen, Radboud Inst Hlth Sci, Dept Primary & Community Care, Med Ctr, Nijmegen, Netherlands

[6] Univ South Eastern Norway, Fac Hlth & Social Sci, Drammen, Norway

[7] Univ Amsterdam, Amsterdam Univ Med Ctr, LYMMCARE Lymphoma & Myeloma Ctr Amsterdam, Dept Hematol, Amsterdam, Netherlands

[8] Leiden Univ, Dept Biomed Data Sci, Med Ctr, Med Decis Making, Leiden, Netherlands

关键词: Information tailoring;    Patient-provider communication;    Hematology/oncology;    Information recall;    Satisfaction;    Trust;    Information provision;    Cancer;    Video vignettes;   

DOI  :  10.1016/j.pec.2019.09.024

来源: Elsevier

【 摘 要 】

Objectives: Tailoring medical information to cancer patients' needs is recommended, but there is little guidance on how to tailor, and limited research exists about its effects. Tailoring to the amount of preferred information may be easily implementable in clinic and is tested here. Methods: A video-vignette experiment was used to systematically vary video patients' information preferences (limited/extensive) and amount of provided information (additional/no additional). N= 253 cancer patients/survivors evaluated these video-recorded consultations, serving as analogue patients (APs), and completed outcome measures. Results: Tailoring information to video patients' preferences had no effect on APs' evaluation of the consultation (satisfaction, trust). Yet, there was a main effect of APs' own information preferences: Those preferring extensive information recalled (M Delta = 5.8%) and recognized (M Delta = 3.5%) more information than those preferring limited information. Moreover, information provision mattered among APs who preferred limited information: They recognized even less if provided with extensive information. Conclusions: Tailoring to the amount of video patient's information preferences did not affect APs' evaluation of the consultation (satisfaction, trust), while APs' personal information preferences determined their recall and recognition of medical information. Practice implications: Information preferences should be assessed and tailored to in clinical practice. Overwhelming patients/survivors, who prefer limited information, should be prevented. (C) 2019 Elsevier B.V. All rights reserved.

【 授权许可】

Free