A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective

International Journal for Equity in Health

Research

Maureen Markle-Reid¹  Jenny Ploeg¹  Bharati Sethi¹  Allison Williams¹  Sunita Ghosh²  Wendy Duggleby²  Shelley Peacock³ 

[1] McMaster University, School of Geography and Earth Sciences, 1280 Main Street West, L8S 4 K1, Hamilton, ON, Canada;University of Alberta, Faculty of Nursing, 11405 87 Avenue NW, T6G 1C9, Edmonton, AB, Canada;University of Saskatchewan, College of Nursing, 104 Clinic Place, SK S7N 2Z4, Saskatoon, Canada;

关键词: Elderly;    Multiple chronic conditions;    Informal caregivers;   

DOI  :  10.1186/s12939-016-0328-6

 received in 2015-08-04, accepted in 2016-02-23,  发布年份 2016

来源: Springer

【 摘 要 】

BackgroundA little-studied issue in the provision of care at home by informal caregivers is the increase in older adult patients with chronic illness, and more specifically, multiple chronic conditions (MCC). We know little about the caregiving experience for this population, particularly as it is affected by social location, which refers to either a group’s or individual’s place/location in society at a given time, based on their intersecting demographics (age, gender, education, race, immigration status, geography, etc.). We have yet to fully comprehend the combined influence of these intersecting axes on caregivers’ health and wellbeing, and attempt to do this by using an intersectionality approach in answering the following research question: How does social location influence the experience of family caregivers of older adults with MCC?MethodsThe data presented herein is a thematic analysis of a qualitative sub-set of a large two-province study conducted using a repeated-measures embedded mixed method design. A survey sub-set of 20 survey participants per province (n = 40 total) were invited to participate in a semi-structured interview. In the first stage of data analysis, Charmaz’s (2006) Constructivist Grounded Theory Method (CGTM) was used to develop initial codes, focused codes, categories and descriptive themes. In the second and the third stages of analysis, intersectionality was used to develop final analytical themes.ResultsThe following four themes describe the overall study findings: (1) Caregiving Trajectory, where three caregiving phases were identified; (2) Work, Family, and Caregiving, where the impact of caregiving was discussed on other areas of caregivers’ lives; (3) Personal and Structural Determinants of Caregiving, where caregiving sustainability and coping were deliberated, and; (4) Finding Meaning/Self in Caregiving, where meaning-making was highlighted.ConclusionsThe intersectionality approach presented a number of axes of diversity as comparatively more important than others; these included gender, age, education, employment status, ethnicity, and degree of social connectedness. This can inform caregiver policy and programs to sustain health and well-being.

【 授权许可】

CC BY   
© Williams et al. 2016