Comparison of child self-reports and parent proxy-reports on quality of life of children with attention deficit hyperactivity disorder

Health and Quality of Life Outcomes

Research

Juliana CB Marques¹  Erasmo B Casella¹  Allana MV Lima²  Juliana B Goulardins²  Roseane O Nascimento²  Jorge A Oliveira² 

[1] Departament of Pediatrics, Child Institute, Faculty of Medicine of University of São Paulo, Av. Dr. Enéas Carvalho de Aguiar, 647, SP CEP: 05403.000, São Paulo, Brasil;Motor Behavior Laboratory, School of Physical Education and Sports, University of São Paulo, Av. Prof. Mello Moraes, 65, Cidade Universitária, SP CEP: 05508-030, São Paulo, Brazil;

关键词: Quality of life;    Attention deficit hyperactivity disorder;    Child;    Self-concept;   

DOI  :  10.1186/1477-7525-11-186

 received in 2013-05-21, accepted in 2013-10-30,  发布年份 2013

来源: Springer

【 摘 要 】

BackgroundAttention deficit hyperactivity disorder (ADHD) is a neurobiological condition that affects 3%–7% of the pediatric population and significantly compromises the quality of life (QoL) of these individuals. The aim of the current study was to compare child self-reports and parent proxy reports on the QoL of children with ADHD.MethodsForty-five children with ADHD, combined type, aged 8–12 years without comorbidities, were compared with 43 typically developing children. PedsQL™ 4.0 (Pediatric QoL Inventory™) Generic Core Scales (physical, emotional, social, and school functioning) were completed by families and children self-reporting their health-related QoL.ResultsChildren with ADHD reported themselves significantly lowered their PedsQL™ scores on all dimensions in comparison to typically developing children. Statistically significant differences were observed in social functioning (p = 0.010), school functioning (p <0.001), psychosocial health (p <0.001), and total score (p = 0.002). The physical functioning and emotional functioning dimensions did not differ significantly between groups, with p = 0.841 and p = 0.070, respectively. Parents of children with ADHD also reported lower PedsQL™ scores, with statistically significant differences in all dimensions. The relationship between child self-reports and parent proxy reports indicated that there is greater agreement among children with ADHD, except for the school functioning.ConclusionsThis suggests that children with the disorder and their parents have a perception of the functional limitations the disorder brings. It is therefore important to undertake studies to verify the QoL in children with ADHD that aim to provide and measure the scope of the well-being of these children.

【 授权许可】

Unknown   
© Marques et al.; licensee BioMed Central Ltd. 2013. This article is published under license to BioMed Central Ltd. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.