The COPD-SIB: a newly developed disease-specific item bank to measure health-related quality of life in patients with chronic obstructive pulmonary disease

Health and Quality of Life Outcomes

Research

Muirne C. S. Paap¹  Lonneke I. M. Lenferink²  Karel A. Kroeze³  Job van der Palen⁴  Nadine Herzog⁵ 

[1] Centre for Educational Measurement at the University of Oslo (CEMO), Faculty of Educational Sciences, University of Oslo, Oslo, Norway;Department of Research Methodology, Measurement, and Data-Analysis, Behavioural, Management and Social Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands;Department of Clinical Psychology, Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands;Department of Research Methodology, Measurement, and Data-Analysis, Behavioural, Management and Social Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands;Department of Research Methodology, Measurement, and Data-Analysis, Behavioural, Management and Social Sciences, University of Twente, P.O. Box 217, 7500 AE, Enschede, The Netherlands;Medical School Twente, Medisch Spectrum Twente, Enschede, The Netherlands;University of Twente, Enschede, The Netherlands;

关键词: Item response theory;    IRT;    Patient perspective;    Item bank;    COPD;    SGRQ-C;    MRF-26;    VQ11;    QoL-RIQ;   

DOI  :  10.1186/s12955-016-0500-0

 received in 2016-02-05, accepted in 2016-06-20,  发布年份 2016

来源: Springer

【 摘 要 】

BackgroundHealth-related quality of life (HRQoL) is widely used as an outcome measure in the evaluation of treatment interventions in patients with chronic obstructive pulmonary disease (COPD). In order to address challenges associated with existing fixed-length measures (e.g., too long to be used routinely, too short to ensure both content validity and reliability), a COPD-specific item bank (COPD-SIB) was developed.MethodsItems were selected based on literature review and interviews with Dutch COPD patients, with a strong focus on both content validity and item comprehension. The psychometric quality of the item bank was evaluated using Mokken Scale Analysis and parametric Item Response Theory, using data of 666 COPD patients.ResultsThe final item bank contains 46 items that form a strong scale, tapping into eight important themes that were identified based on literature review and patient interviews: Coping with disease/symptoms, adaptability; Autonomy; Anxiety about the course/end-state of the disease, hopelessness; Positive psychological functioning; Situations triggering or enhancing breathing problems; Symptoms; Activity; Impact.ConclusionsThe 46-item COPD-SIB has good psychometric properties and content validity. Items are available in Dutch and English. The COPD-SIB can be used as a stand-alone instrument, or to inform computerised adaptive testing.

【 授权许可】

CC BY   
© The Author(s). 2016

【 图 表 】

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