Dementia resources for eating, activity, and meaningful inclusion (DREAM) toolkit co-development: process, output, and lessons learned

Research Involvement and Engagement

Comment

Tracie Albisser¹  Ann Holmes¹  Sana Aziz²  Fatim Ajwani³  Emma Rossnagel⁴  Shannon Freeman⁴  Chelsea Pelletier⁴  M. Claire Buchan⁵  Kelly Skinner⁵  Louisa Sanchez⁵  Alexandra Butler⁵  Cindy Wei⁵  Rachael Donnelly⁵  Isabella Romano⁵  Amanda Doggett⁵  Huda Jamal Nasir⁵  William Heibein⁵  Kayla Regan⁵  Carole Johannesson⁵  Heather Keller⁶  Laura E. Middleton⁶ 

[1] Active Health Solutions, 150 - 556 North Nechako Road, V2K 1A1, Prince George, BC, Canada;Alzheimer Society of B.C., 828 W 8Th Ave Suite 300, V5Z 1E2, Vancouver, BC, Canada;University Health Network, 550 University Ave, M5G 2A2, Toronto, ON, Canada;University of Northern British Columbia, 3333 University Way, V2N 4Z9, Prince George, BC, Canada;University of Waterloo, 200 University Ave. W., N2L3G1, Waterloo, ON, Canada;University of Waterloo, 200 University Ave. W., N2L3G1, Waterloo, ON, Canada;Schlegel-UW Research Institute for Aging, 250 Laurelwood Dr, N2J 0E2, Waterloo, ON, Canada;

关键词: Dementia;    Care partner;    Co-development;    Patient and public involvement;    Physical activity;    Nutrition;    Wellbeing;    Training;    Education;    Toolkit;   

DOI  :  10.1186/s40900-023-00497-4

 received in 2023-04-04, accepted in 2023-09-14,  发布年份 2023

来源: Springer

【 摘 要 】

Promoting wellbeing of persons with dementia and their families is a priority of research and practice. Engaging diverse partners, including persons with dementia and their families, to co-develop interventions promotes relevant and impactful solutions. We describe the process, output, and lessons learned from the dementia resources for eating, activity, and meaningful inclusion (DREAM) project, which co-developed tools/resources with persons with dementia, care partners, community service providers, health care professionals, and researchers with the aim of increasing supports for physical activity, healthy eating, and wellbeing of persons with dementia. Our process included: (1) Engaging and maintaining the DREAM Steering Team; (2) Setting and navigating ways of engagement; (3) Selecting the priority audience and content; (4) Drafting the toolkit; (5) Iterative co-development of tools and resources; (6) Usability testing; and (7) Implementation and evaluation. In virtual meetings, the DREAM Steering Team confirmed the toolkit audiences (primary: community service providers; secondary: persons with dementia and care partners) and identified and evolved content areas. An environmental scan identified few existing, high-quality resources aligned with content areas. The Steering Team, additional multi-perspective partners, and external contractors iteratively co-developed new tools/resources to meet gaps over a 4-month virtual process that included virtual meetings, email exchange of documents and feedback, and one-on-one calls by telephone or email. The final DREAM toolkit includes a website with seven learning modules (on the diversity of dementia, rights and inclusion of persons living with dementia, physical activity, healthy eating, dementia-inclusive practices), a learning manual, six videos, nine handouts, and four wallet cards (www.dementiawellness.ca). Our co-development participants rated the process highly in relation to the principles and enablers of authentic partnership even though all engagement was virtual. Through use of the co-developed DREAM toolkit, we anticipate community service providers will gain the knowledge and confidence needed to provide dementia-inclusive wellness programs and services that benefit persons with dementia and their families.

【 授权许可】

CC BY   
© BioMed Central Ltd., part of Springer Nature 2023

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