The INSIGHT project: reflections on the co-production of a quality recognition programme to showcase excellence in public involvement in health and care research

Research Involvement and Engagement

Research

Lucy O’Mara¹  Katharine Lewney¹  Phillip Parkes²  Darren Murinas²  Rachele Hine²  Samantha Fairbanks²  Andrew Meakin²  Marilyn Jones³  Anthony A. Fryer⁴  Nicola Evans⁴  Steven Blackburn⁵  Robert Taylor⁶  Linda Parton⁶  Jennifer Lench⁷  Jessica Tunmore⁷ 

[1] Directorate of Research and Innovation and Centre for NMAHP Research and Education Excellence (CeNREE), University Hospitals of North Midlands, Staffordshire, UK;Expert Citizens CIC, The Dudson Centre, Hanley, Staffordshire, UK;Expert by Experience, Shropshire, UK;Impact Accelerator Unit, School of Medicine, Keele University, ST5 5BG, Keele, Staffordshire, UK;Institute for Applied Health Research, University of Birmingham, Birmingham, UK;Research User Group, Keele University, Keele, Staffordshire, UK;Research and Innovation Department, Midlands Partnership University NHS Foundation Trust, St George’s Hospital, Stafford, UK;

关键词: Public involvement;    Quality improvement;    Appreciative inquiry;    Co-production;    UK Standards for Public Involvement;   

DOI  :  10.1186/s40900-023-00508-4

 received in 2023-06-21, accepted in 2023-10-20,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundThe quality of Patient and Public Involvement (PPI) in healthcare research varies considerably and is frequently tokenistic. We aimed to co-produce the Insight | Public Involvement Quality Recognition and Awards programme, based on the UK Standards for Public Involvement (UKSPI) alongside an incremental scale designed by Expert Citizens (a lived experience-led community group), to incentivise and celebrate continuous improvement in PPI.MethodsWe used Task and Finish Groups (19/44 [43%] public contributor membership) to co-produce the programme which we piloted in three organisations with different healthcare research models. We used surveys and review sessions to capture learning and reflections.ResultsWe co-created:A Quality descriptor matrix comprising four incremental quality levels (Welcoming, Listening, Learning, Leading) for each UKSPI standard.An assessment framework including guidance materials, self-assessment form and final report template.An assessor training package.The quality awards event format and nomination form. These materials were modified based on pilot-site feedback.Of survey respondents: 94.4% felt they had made at least ‘Some’ personal contribution (half said ‘Quite a lot’/‘A great deal’), 88.9% said they were ‘Always’/‘Often’ able to express their views freely and, 100% stated the programme would have ‘A lot of impact’/‘Quite a bit of impact’.During the project, we identified the importance of taking time to explain project aims and contributor roles, adapting to the needs of individual contributors and, using smaller bespoke sessions outside the main Task and Finish Groups.ConclusionsWe co-produced and piloted a quality recognition programme to incentivise and celebrate continuous quality improvement in PPI. One public contributor stated, “I feel strongly that the Insight framework and awards will raise awareness of the [public involvement] work going on in many community settings. [It] is likely to result in better sharing of positive practice, incentivising research groups of any size to start work or to improve the quality of [PPI] could be one of the main benefits. I’m excited that if this initiative takes off, regionally and then in the longer term nationally, it could be a significant step in advancing the [public] voice.”

【 授权许可】

CC BY   
© BioMed Central Ltd., part of Springer Nature 2023

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