Person-centred care in chronic kidney disease: a cross-sectional study of patients’ desires for self-management support

BMC Nephrology

Research Article

Clint Douglas¹  Kathryn Havas²  Ann Bonner³ 

[1] School of Nursing, Queensland University of Technology, Victoria Park Rd, 4059, Kelvin Grove, Brisbane, QLD, Australia;School of Nursing, Queensland University of Technology, Victoria Park Rd, 4059, Kelvin Grove, Brisbane, QLD, Australia;Chronic Kidney Disease Centre for Research Excellence, University of Queensland, Brisbane, Australia;School of Nursing, Queensland University of Technology, Victoria Park Rd, 4059, Kelvin Grove, Brisbane, QLD, Australia;Chronic Kidney Disease Centre for Research Excellence, University of Queensland, Brisbane, Australia;Visiting Research Fellow, Kidney Health Service, Metro North Hospital and Health Service, Brisbane, Australia;

关键词: Chronic kidney disease;    Self-management;    Patient education;    Patient-centred care;    Patient preferences;   

DOI  :  10.1186/s12882-016-0416-2

 received in 2016-03-01, accepted in 2016-12-09,  发布年份 2017

来源: Springer

【 摘 要 】

BackgroundPeople with chronic kidney disease (CKD) must self-manage their illness to assist with slowing disease-progression, but this is a complex task requiring support from healthcare professionals. Despite the established importance of person-centred care, people with CKD are rarely consulted regarding their desires for self-management support (SMS).MethodsA cross-sectional survey was conducted face-to-face in a Queensland primary care clinic and distributed Australia-wide via an online interface promoted by Kidney Health Australia during 2015. Participants were ≥18 years old and had a self-reported doctor’s diagnosis of CKD (any stage; N = 97). The survey was based upon existent literature which identified 10 areas that those with CKD believe require additional support. Descriptive data were generated and Mann-Whitney U tests were performed to compare the desires of different groups of participants.ResultsOf the 97 participants, 36 completed a hardcopy survey in clinic, and 61 completed the online version. Just over half (60.8%) were female, age ranged from 16–89 (M = 56.44), and time since diagnosis ranged from just diagnosed to 60 years (Mdn = 8.08 years). Strong interest in receiving additional support across all 10 areas was reported (Mdns = 8.00–10.00), with “keeping a positive attitude and taking care of mental and physical health” receiving the highest rating. Those who were: younger (p < .001); more highly educated (p < .001); working (p < .001); diagnosed longer ago (p = .015); and women (p = .050) expressed stronger overall desire for additional support.ConclusionsIn addition to information about CKD and medications, everyday strategies ought to be prioritised in patient education. Varying levels of engagement and eagerness to learn more about self-management highlight the need for a person-centred approach to SMS.

【 授权许可】

CC BY   
© The Author(s). 2017