Beyond quality of life: a cross sectional study on the mental health of patients with chronic kidney disease undergoing dialysis and their caregivers

Health and Quality of Life Outcomes

Research

Neimar da Silva Fernandes¹  Natália Maria da Silva Fernandes²  Fabiane Rossi dos Santos Grincenkov³  Beatriz dos Santos Pereira⁴  Renata Abrita⁵  Nayara Pires de Melo⁶ 

[1] Exact Sciences, Federal University of Juiz de Fora (UFJF), Juiz de Fora, Brazil;Medical Clinic Department, Federal University of Juiz de Fora (UFJF), Rua Jamil Altaff, 132, Vale do Ipê, CEP- 36035 380, Juiz de Fora, Minas Gerais, Brazil;Psychology University, Federal University of Juiz de Fora (UFJF), Juiz de Fora, Brazil;Psychology, Federal University of Juiz de Fora (UFJF) – Interdisciplinary Nuclei of Nephrology Studies and Researches (NIEPEN), Juiz de Fora, Brazil;Psychology, Higher Education Center of Juiz de Fora (CES), Juiz de Fora, Brazil;Social Services, Federal University of Juiz de Fora (UFJF), Juiz de Fora, Brazil;

关键词: Social Support;    Chronic Kidney Disease;    Peritoneal Dialysis;    Renal Replacement Therapy;    Psychological Symptom;   

DOI  :  10.1186/s12955-017-0646-4

 received in 2016-05-31, accepted in 2017-03-30,  发布年份 2017

来源: Springer

【 摘 要 】

BackgroundPatients with terminal chronic kidney disease (CKDT) requiring renal replacement therapies (RRT) undergo important changes in living habits and frequently need caregiving. These patients and their caregivers are risk groups for the development of physical and psychological symptoms. This study aimed to evaluate the prevalence of anxiety, depression, stress, fatigue, social support, and quality of life in patients with CKD and their caregivers.MethodThis cross sectional study was conducted with 21 patients and their caregivers, from January to September 2015. We included patients aged over 18 years, with at least 6 months on dialysis treatment, and caregivers who were family members. The participants’ social, demographic, clinical, laboratory, and psychological variables were evaluated. A descriptive analysis and an examination of the association between patients and caregivers were performed.ResultsAmong patients, we observed that 38.1% had symptoms that indicated anxiety and depression. The average score for practical social support was 3.15 ± 0.769 and that for emotional social support was 3.16 ± 0.79. As for fatigue, 14.3% of patients reported being ‘extremely tired’ and 14.3% reported that they engaged in all the activities they usually performed before the illness. Further, 57.1% presented stress, and of these, 66.7% were at the resistance stage, with predominance of psychological symptoms in 60.0%. The quality of life domain in terms of functional capacity (FC) presented a correlation with haemoglobin level (r = 0.581, p = 0.006) and non-anaemic patients presented better FC. Among caregivers, we observed symptoms that indicated anxiety and depression in 33.3% of the sample. Caregivers exhibited an average score of 2.88 ± 0.77 for practical social support and 3.0 ± 0.72 for emotional social support. Further, 14.3% reported being ‘extremely tired’ and 28.8% reported that they engaged in all activities that they usually performed before the patient’s illness. When comparing the two groups (patients vs. caregivers), we observed that they presented similar results for the presence of anxiety, depression, and fatigue. Caregivers received less social support than patients did. Both groups presented similar predominance of stress levels; however, patients presented more predominance of psychological symptoms. With reference to quality of life, patients and caregivers presented similar results on the social aspects, vitality, mental health, and mental domains.ConclusionThe mental health characteristics of patients and caregivers were similar, and within the context of dialysis for renal disease, both must undergo specific interventions.

【 授权许可】

CC BY   
© The Author(s). 2017