Feedback on end-of-life care in dementia: the study protocol of the FOLlow-up project

BMC Palliative Care

Study Protocol

Henrica C W de Vet¹  Mirjam C van Soest-Poortvliet²  Cees M P M Hertogh²  Jenny T van der Steen²  Jannie A Boogaard³  Wilco P Achterberg⁴  Johannes R Anema⁵ 

[1] Department of Epidemiology and Biostatistics, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands;Department of General Practice & Elderly Care Medicine, EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, 1081BT, Amsterdam, The Netherlands;Department of General Practice & Elderly Care Medicine, EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, 1081BT, Amsterdam, The Netherlands;Gerion, VU University Medical Center, Amsterdam, The Netherlands;Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands;Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands;

关键词: End-of-life care;    Satisfaction with care;    Quality of care;    Dementia;    Nursing home;    Quality indicators;   

DOI  :  10.1186/1472-684X-12-29

 received in 2013-05-24, accepted in 2013-08-01,  发布年份 2013

来源: Springer

【 摘 要 】

BackgroundEnd-of-life care in dementia in nursing homes is often found to be suboptimal. The Feedback on End-of-Life care in dementia (FOLlow-up) project tests the effectiveness of audit- and feedback to improve the quality of end-of-life care in dementia.Methods/DesignNursing homes systematically invite the family after death of a resident with dementia to provide feedback using the End-of-Life in Dementia (EOLD) – instruments. Two audit- and feedback strategies are designed and tested in a three-armed Randomized Controlled Trial (RCT): a generic feedback strategy using cumulative EOLD-scores of a group of patients and a patient specific feedback strategy using EOLD-scores on a patient level. A total of 18 nursing homes, three groups of six homes matched on size, geographic location, religious affiliation and availability of a palliative care unit were randomly assigned to an intervention group or the control group. The effect on quality of care and quality of dying and the barriers and facilitators of audit- and feedback in the nursing home setting are evaluated using mixed-method analyses.DiscussionThe FOLlow-up project is the first study to assess and compare the effect of two audit- and feedback strategies to improve quality of care and quality of dying in dementia. The results contribute to the development of practice guidelines for nursing homes to monitor and improve care outcomes in the realm of end-of-life care in dementia.Trial registrationThe Netherlands National Trial Register (NTR). Trial number: NTR3942

【 授权许可】

CC BY   
© Boogaard et al.; licensee BioMed Central Ltd. 2013