A systematic review of the psychometric properties of Quality of Life measures for school aged children with cerebral palsy

BMC Pediatrics

Research Article

Rose Gilmore¹  Leanne Sakzewski²  Roslyn Boyd²  Katherine Yong³  Stacey Carlon³  Nora Shields⁴ 

[1] Florey Neurosciences Institute, Austin Repatriation Hospital, Victoria, Heidelberg West, Australia;Florey Neurosciences Institute, Austin Repatriation Hospital, Victoria, Heidelberg West, Australia;Queensland Cerebral Palsy and Rehabilitation Research Centre, School of Medicine, The University of Queensland, Herston, Queensland, Australia;Department of Paediatrics and Child Health, The University of Queensland, Royal Children's Hospital, Herston, Queensland, Australia;School of Physiotherapy, La Trobe University, Bundoora, Victoria, Australia;School of Physiotherapy, La Trobe University, Bundoora, Victoria, Australia;Musculoskeletal Research Centre, La Trobe University, Bundoora, Victoria, Australia;

关键词: Cerebral Palsy;    School Aged Child;    Gross Motor Function Classification System;    Gross Motor Function Classification System Level;    Pediatric Outcome Data Collection Instrument;   

DOI  :  10.1186/1471-2431-10-81

 received in 2009-11-27, accepted in 2010-11-09,  发布年份 2010

来源: Springer

【 摘 要 】

BackgroundThis systematic review aimed to evaluate the psychometric properties and clinical utility of all condition specific outcome measures used to assess quality of life (QOL) in school aged children with cerebral palsy (CP).MethodsRelevant outcome measures were identified by searching 8 electronic databases, supplemented by citation tracking. Two independent reviewers completed data extraction and analysis of the measures using a modified version of the CanChild Outcome Measures Rating Form.ResultsFrom the 776 papers identified 5 outcome measures met the inclusion criteria: the Care and Comfort Hypertonicity Questionnaire (C&CHQ), the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD), CP QOL-Child, DISABKIDS and PedsQL 3.0 CP Module. There was evidence of construct validity for all five measures. Content validity was reported for all measures except PedsQL 3.0. The CPCHILD and CP QOL-Child were the only outcome measures to have reported data on concurrent validity. All measures, with the exception of one (C&CHQ) provided evidence of internal reliability. The CPCHILD and the CP-QOL-Child had evidence of test-retest reliability and DISABKIDS had evidence of inter-rater reliability. There were no published data on the responsiveness of these outcome measures.ConclusionsThe CPCHILD and the CP QOL-Child demonstrated the strongest psychometric properties and clinical utility. Further work is needed, for all measures, on data for sensitivity to change.

【 授权许可】

Unknown   
© Carlon et al; licensee BioMed Central Ltd. 2010. This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.