An innovative electronic health record system for rare and complex diseases

BMC Bioinformatics

Research

Vinicius Garcia¹  Paulo HS Batista¹  Sérgio VA Campos¹  Lucas A Hanke¹  Alessandra C Faria-Campos² 

[1] Department of Computer Science, Universidade Federal de Minas Gerais, Antônio Carlos Avenue, 6627, Pampulha, 30123-970, Belo Horizonte, MG, Brazil;Department of Computer Science, Universidade Federal de Minas Gerais, Antônio Carlos Avenue, 6627, Pampulha, 30123-970, Belo Horizonte, MG, Brazil;INMETRO, Nsa.Sra.das Graças Avenue, 50, 25250-020, Xérem-Duque de Caxias, RJ, Brazil;

关键词: Electronic Health Record;    Laboratory Information Management Systems;    Workflow;   

DOI  :  10.1186/1471-2105-16-S19-S4

来源: Springer

【 摘 要 】

BackgroundThere exists a large number of rare and complex diseases that are neglected due to the difficulty in diagnosis and treatment. Being rare, they normally do not justify the costs of developing an especialized Electronic Health Record (EHR) system to assist doctors and patients of these diseases. In this work we propose the use of Computer applications known as Laboratory Information Management Systems (LIMS) to address this issue.ResultsIn this work we describe a fully customizable EHR system that uses a workflow based LIMS with an easy to adapt interface for data collection and retrieval. This system can easily be customized to manage different types of medical data. The customization for a new disease can be done in a few hours with the help of a specialist.ConclusionWe have used the proposed system to manage data from patients of three complex diseases: neuromyelitis optica, paracoccidioidomycosis and adrenoleukodistrofy. These diseases have very different symptoms, exams, diagnostics and treatments, but the FluxMED system is able to manage these data in a highly specialized manner without any modifications to its code.

【 授权许可】

CC BY   
© Faria-Campos et al. 2015