Age-based disparities in end-of-life decisions in Belgium: a population-based death certificate survey

BMC Public Health

Research Article

H Roeline W Pasman¹  Johan Bilsen²  Kenneth Chambaere²  Reginald Deschepper²  Judith A C Rietjens²  Tinne Smets²  Luc Deliens³ 

[1] Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Centre, Amsterdam, The Netherlands;End-of-life Care Research Group, Ghent University & Vrije Universiteit Brussel, Laarbeeklaan 103, 1090, Brussels, Belgium;End-of-life Care Research Group, Ghent University & Vrije Universiteit Brussel, Laarbeeklaan 103, 1090, Brussels, Belgium;Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Centre, Amsterdam, The Netherlands;

关键词: Ageism;    Age inequalities;    End of life;    End-of-life decisions;    Slippery slope;    Euthanasia;    Palliative care;    Belgium;   

DOI  :  10.1186/1471-2458-12-447

 received in 2011-10-18, accepted in 2012-04-12,  发布年份 2012

来源: Springer

【 摘 要 】

BackgroundA growing body of scientific research is suggesting that end-of-life care and decision making may differ between age groups and that elderly patients may be the most vulnerable to exclusion of due care at the end of life. This study investigates age-related disparities in the rate of end-of-life decisions with a possible or certain life shortening effect (ELDs) and in the preceding decision making process in Flanders, Belgium in 2007, where euthanasia was legalised in 2002. Comparing with data from an identical survey in 1998 we also study the plausibility of the ‘slippery slope’ hypothesis which predicts a rise in the rate of administration of life ending drugs without patient request, especially among elderly patients, in countries where euthanasia is legal.MethodWe performed a post-mortem survey among physicians certifying a large representative sample (n = 6927) of death certificates in 2007, identical to a 1998 survey. Response rate was 58.4%.ResultsWhile the rates of non-treatment decisions (NTD) and administration of life ending drugs without explicit request (LAWER) did not differ between age groups, the use of intensified alleviation of pain and symptoms (APS) and euthanasia/assisted suicide (EAS), as well as the proportion of euthanasia requests granted, was bivariately and negatively associated with patient age. Multivariate analysis showed no significant effects of age on ELD rates. Older patients were less often included in decision making for APS and more often deemed lacking in capacity than were younger patients. Comparison with 1998 showed a decrease in the rate of LAWER in all age groups except in the 80+ age group where the rate was stagnant.ConclusionAge is not a determining factor in the rate of end-of-life decisions, but is in decision making as patient inclusion rates decrease with old age. Our results suggest there is a need to focus advance care planning initiatives on elderly patients. The slippery slope hypothesis cannot be confirmed either in general or among older people, as since the euthanasia law fewer LAWER cases were found.

【 授权许可】

CC BY   
© Chambaere et al.; licensee BioMed Central Ltd. 2012