Evaluation of the living with hope program for rural women caregivers of persons with advanced cancer

BMC Palliative Care

Research Article

Allison Williams¹  Roanne Thomas McLean²  Lorraine Holstlander³  Sunita Ghosh⁴  Wendy Duggleby⁵  Mary Hampton⁶  Dan Cooper⁷  Lars K Hallstrom⁸ 

[1] CIHR ECHO/IGH Mid Career Scientist, School of Geography and Earth Sciences, McMaster University, 1280 Main Street, L8S 4K1, West Hamilton, ON, Canada;Chaire de recherche du Canada, Professeure agrégée, École des sciences de la réadaptation Université d'Ottawa, Guindon Hall, Room 3068, 451 Smyth Rd, K1H 8M5, Ottawa, ON, Canada;College of Nursing, University of Saskatchewan, Office Rm 343 Ellis Hall 107 Wiggins RdS7N5E5, Saskatoon, SK, Canada;Medical Oncology, University of Alberta, Cross Cancer Institute, 11560 - University Ave NW, T6G 1Z2, Edmonton, AB, Canada;Nursing Research Chair Aging and Quality of Life, Faculty of Nursing University of Alberta, 3rd Level ECHA 11403 87th AveT6G 1C9, Edmonton, AB, Canada;Psychology, Luther College, University of Regina, 3737 Wascana Parkway, S4S 0A2, Regina, SK, Canada;RQHR Palliative Care Services, Clinical Practice Leader (Spiritual Care), Spiritual Care Educator, Research, QI and Special Projects Manager, 4F - 4101 Dewdney Ave, S4T 1A5, Regina, SK, Canada;University of Alberta, Augustana Campus, Room 2-134 Augustana Forum, 4901-46 Ave, T4V 2R3, Camrose, AB, Canada;

关键词: Hope;    Caregivers;    Palliative care;    Intervention;   

DOI  :  10.1186/1472-684X-12-36

 received in 2013-01-25, accepted in 2013-09-16,  发布年份 2013

来源: Springer

【 摘 要 】

BackgroundHope has been identified as a key psychosocial resource among family caregivers to manage and deal with the caregiver experience. The Living with Hope Program is a self-administered intervention that consists of watching an international award winning Living with Hope film and participating in a two week hope activity (“Stories of the Present”). The purpose of this study was to examine the effects of the Living with Hope Program on self-efficacy [General Self-Efficacy Scale], loss and grief [Non-Death Revised Grief Experience Inventory], hope [Herth Hope Index] and quality of life [Short-Form 12 version 2 (SF-12v2)] in rural women caring for persons with advanced cancer and to model potential mechanisms through which changes occurred.MethodsA time-series embedded mixed method design was used, with quantitative baseline outcome measures repeated at day 7, day 14, and 3, 6 and 12 months. Qualitative data from the hope activity informed the quantitative data. Thirty-six participants agreed to participate with 22 completing all data collection. General estimating equations were used to analyze the data.ResultsHerth Hope Index scores (p=0.05) had increased significantly from baseline at day 7. General Self Efficacy Scale scores were significantly higher than baseline at all data time points. To determine the mechanisms of the Living with Hope Program through which changes occurred, results of the data analysis suggested that as General Self Efficacy Scale scores increased (p<0.001) and Non-death Revised Grief Experience Inventory scores decreased (p=0.01) Herth Hope Index scores increased. In addition as Herth Hope Index scores increased (p<0.001) and Non-death Revised Grief Experience Inventory scores decreased (p=0.01), SF-12v2 mental health summary scores increased. Qualitative data suggested that through the hope activity (Stories of the Present) the participants were able to find positives and hope in their experience.ConclusionsThe Living with Hope Program has potential to increase hope and improve quality of life for rural women caregivers of persons with advanced cancer. The possible mechanisms by which changes in hope and quality of life occur are by decreasing loss and grief and increasing self-efficacy.Trial registrationsRegistration ClinicalTrails.gov, NCT01081301.

【 授权许可】

CC BY   
© Duggleby et al.; licensee BioMed Central Ltd. 2013