The German fibromyalgia consumer reports – a cross-sectional survey

BMC Musculoskeletal Disorders

Research Article

Reinhard Thoma¹  Franz Petermann²  Thomas Weiss³  Eva Jung⁴  Winfried Häuser⁴  Jost Langhorst⁵  Andreas Winkelmann⁶  Frederick Wolfe⁷  Mechthild Gesmann⁸  Hedi Kühn-Becker⁹  Brigitte Erbslöh-Möller^1,10 

[1] Algesiologikum München, 80799, München, Germany;Centre of clinical psychology and rehabilitation, Universität Bremen, D- 28359, Bremen, Germany;Day clinic Mannheim Dr. Weiss, D-68161, Mannheim, Germany;Department Internal Medicine I, Klinikum Saarbrücken, D-66119, Saarbrücken, Germany;Department of Psychosomatic medicine and psychotherapy, Technische Universität München, D-81675, München, Germany;Department Internal Medicine V (Integrative Medicine), Kliniken Essen-Mitte, Universität Essen-Duisburg, D-45726, Essen, Germany;Department of Physical Medicine and Rehabilitation, Klinikum der, Universität München, D-80336, München, Germany;National Data Bank for Rheumatic Diseases, Wichita, Kansas and University of Kansas School of Medicine, Wichita, KS, USA;Psychosomatic medicine and pain therapy office, D- 32049, Herford, Germany;Psychosomatic medicine and pain therapy office, D-66432, Zweibrücken, Germany;Rheumatology Office, D-66538, Neunkirchen, Germany;

关键词: Fibromyalgia syndrome;    Consumer reports;    Drugs;    Non-pharmacological therapies;   

DOI  :  10.1186/1471-2474-13-74

 received in 2011-11-28, accepted in 2012-05-07,  发布年份 2012

来源: Springer

【 摘 要 】

BackgroundConsumer surveys provide information on effectiveness and side effects of medical interventions in routine clinical care. A report of fibromyalgia syndrome (FMS) consumers has not been carried out in Europe.MethodsThe study was carried out from November 2010 to April 2011. Participants diagnosed with FMS rated the effectiveness and side effects of pharmacological and non-pharmacological FMS interventions on a 0 to 10 scale, with 10 being most efficacious (harmful). The questionnaire was distributed by the German League for people with Arthritis and Rheumatism and the German Fibromyalgia Association to their members and to all consecutive FMS patients of nine clinical centers of different levels of care.Results1661 questionnaires (95% women, mean age 54 years, mean duration since FMS diagnosis 6.8 years) were analysed. The most frequently used therapies were self-management strategies, prescription pain medication and aerobic exercise. The highest average effectiveness was attributed to whole body and local warmth therapies, thermal bathes, FMS education and resting. The highest average side effects were attributed to strong opioids, local cold therapy, gamma-amino-butyric acid analogues (pregabalin and gabapentin), tramadol and opioid transdermal systems.ConclusionThe German fibromyalgia consumer reports highlight the importance of non-pharmcological therapies in the long-term management of FMS, and challenges the strong recommendations for drug therapies given by FMS-guidelines.

【 授权许可】

Unknown   
© Hauser et al.; licensee BioMed Central Ltd. 2012. This article is published under license to BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.