Living with hypertrophic cardiomyopathy and an implantable defibrillator

BMC Cardiovascular Disorders

Research Article

Peter Magnusson¹  Lennart Fredriksson²  Jessica Jonsson²  Stellan Mörner³ 

[1] Cardiology Research Unit, Department of Medicine, Karolinska Institutet, Karolinska University Hospital/Solna, SE-171 76, Stockholm, Sweden;Centre for Research and Development, Uppsala University/Region Gävleborg, SE-801 87, Gävle, Sweden;Centre for Research and Development, Uppsala University/Region Gävleborg, SE-801 87, Gävle, Sweden;Department of Public Health and Clinical Medicine, Umeå University, SE-90187, Umeå, Sweden;

关键词: Content analysis;    Hermeneutics;    Hypertrophic Cardiomyopathy;    Implantable cardioverter defibrillator;    Interview;    Qualitative;   

DOI  :  10.1186/s12872-017-0553-y

 received in 2016-08-29, accepted in 2017-05-04,  发布年份 2017

来源: Springer

【 摘 要 】

BackgroundICDs efficiently terminate life-threatening arrhythmias, but complications occur during long-term follow-up. Patients’ own perspective is largely unknown. The aim of the study was to describe experiences of hypertrophic cardiomyopathy (HCM) patients with implantable defibrillators (ICDs).MethodsWe analyzed 26 Swedish patient interviews using hermeneutics and latent content analysis.ResultsPatients (aged 27–76 years) were limited by HCM especially if it deteriorates into heart failure. The ICD implies safety, gratitude, and is accepted as a part of the body even when inappropriate ICD shocks are encountered. Nobody regretted the implant. Both the disease and the ICD affected professional life and leisure time activities, especially at younger ages. Family support was usually strong, but sometimes resulted in overprotection, whereas health care focused on medical issues. Despite limitations, patients adapted, accepted, and managed challenges.ConclusionHCM patients with ICDs reported good spirit and hope even though they had to adapt and accept limitations over time.

【 授权许可】

CC BY   
© The Author(s). 2017