An assessment of American Indian women's mammography experiences

BMC Women's Health

Study Protocol

Florence Ndikum-Moffor¹  Stephanie Joseph²  Stacy Braiuca²  Kimberly K Engelman³  Christine M Daley⁴  Babalola Faseru⁴  K Allen Greiner⁵  Edward F Ellerbeck⁶  Byron J Gajewski⁷ 

[1] Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS, USA;Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS, USA;Center for American Indian Community Health, University of Kansas Medical Center, Kansas City, KS, USA;Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS, USA;University of Kansas Cancer Center, Kansas City, KS, USA;Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS, USA;University of Kansas Cancer Center, Kansas City, KS, USA;Center for American Indian Community Health, University of Kansas Medical Center, Kansas City, KS, USA;Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS, USA;University of Kansas Cancer Center, Kansas City, KS, USA;Center for American Indian Community Health, University of Kansas Medical Center, Kansas City, KS, USA;Department of Family Medicine, University of Kansas Medical Center, Kansas City, KS, USA;Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS, USA;University of Kansas Cancer Center, Kansas City, KS, USA;Department of Internal Medicine, University of Kansas Medical Center, Kansas City, KS, USA;University of Kansas Cancer Center, Kansas City, KS, USA;Department of Biostatistics & Informatics, University of Kansas Medical Center, Kansas City, KS, USA;

关键词: Focus Group;    Black Woman;    Focus Group Participant;    Native Woman;    Indian Health Service;   

DOI  :  10.1186/1472-6874-10-34

 received in 2010-11-23, accepted in 2010-12-15,  发布年份 2010

来源: Springer

【 摘 要 】

BackgroundMortality from breast cancer has increased among American Indian/Alaskan Native (AI/AN) women. Despite this alarming reality, AI/AN women have some of the lowest breast cancer screening rates. Only 37% of eligible AI/AN women report a mammogram within the last year and 52% report a mammogram within the last two years compared to 57% and 72% for White women. The experiences and satisfaction surrounding mammography for AI/AN women likely are different from that of women of other racial/ethnic groups, due to cultural differences and limited access to Indian Health Service sponsored mammography units. The overall goals of this study are to identify and understand the mammography experiences and experiential elements that relate to satisfaction or dissatisfaction with mammography services in an AI/AN population and to develop a culturally-tailored AI/AN mammography satisfaction survey.Methods and DesignThe three project aims that will be used to guide this work are: 1) To compare the mammography experiences and satisfaction with mammography services of Native American/Alaska Native women with that of Non-Hispanic White, Hispanic, and Black women, 2) To develop and validate the psychometric properties of an American Indian Mammography Survey, and 3) To assess variation among AI/AN women's assessments of their mammography experiences and mammography service satisfaction. Evaluations of racial/ethnic differences in mammography patient satisfaction have received little study, particularly among AI/AN women. As such, qualitative study is uniquely suited for an initial examination of their experiences because it will allow for a rich and in-depth identification and exploration of satisfaction elements.DiscussionThis formative research is an essential step in the development of a validated and culturally tailored AI/AN mammography satisfaction assessment. Results from this project will provide a springboard from which a maximally effective breast cancer screening program to benefit AI/AN population will be developed and tested in an effort to alter the current breast cancer-related morbidity and mortality trajectory among AI/AN women.

【 授权许可】

CC BY   
© Engelman et al; licensee BioMed Central Ltd. 2010