BMC Palliative Care | |
Home-based care for people living with dementia at the end of life: the perspective of experts | |
Research | |
Bernhard Holle1  Christiane Pinkert1  | |
[1] Deutsches Zentrum für Neurodegenerative Erkrankungen, Standort Witten, Witten, Germany;Faculty of Health, School of Nursing Science, Witten/Herdecke University (UW/H), Witten, Germany; | |
关键词: Dementia; Palliative care; Community care; Expert interview; | |
DOI : 10.1186/s12904-023-01251-z | |
received in 2023-01-24, accepted in 2023-08-24, 发布年份 2023 | |
来源: Springer | |
【 摘 要 】
BackgroundIn the last phase of their lives, people living with dementia often indicate restlessness, anxiety or pain. Further, their care is considered inadequate, as they are, for example, sometimes overtreated for curative care or undertreated for pain management. These patients also face multiple barriers in accessing palliative care. This qualitative study explores the perception of experts about how people living with dementia in Germany are cared for at home toward the end of their lives.MethodsA total of 12 experts involved in outpatient/palliative care were recruited to constitute a purposive, heterogeneous sample. Interviews, which were structured using an interview guide, were conducted with physicians, nurses, representatives of health insurance funds, welfare associations, municipal counselling centres, scientists and coordinators of outpatient palliative care and voluntary work; the interviews were transcribed and analysed via thematic content analysis, based on Kuckartz’s method.ResultsThe analysis of the results led to the establishment of four main categories that focused on formal care arrangements, the roles of relatives in care arrangements, the specifics of dementia, and restrictions on access to palliative care.ConclusionsSuitable end-of-life care for people living with dementia and support for their relatives require resources and the conceptualisation of specific care arrangements to help minimise potential barriers that prevent access to palliative care.
【 授权许可】
CC BY
© BioMed Central Ltd., part of Springer Nature 2023
【 预 览 】
Files | Size | Format | View |
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RO202310115050381ZK.pdf | 1187KB | download | |
Fig. 8 | 102KB | Image | download |
【 图 表 】
Fig. 8
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