Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit

Frontiers in Pediatrics

Pediatrics

Peter Morris¹  Nicholas Fancourt¹  Gabrielle B. McCallum¹  Anne B. Chang²  Kobi L. Schutz³  James Cush⁴  Kathryn Roberts⁴  Edwina Biancardi⁵  Subash Heraganahally⁶  Rachel Buckley⁷ 

[1] Child Health Division, Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia;Child Health Division, Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia;Department of Respiratory and Sleep Medicine, Queensland Children’s Hospital Queensland University of Technology, Brisbane, QLD, Australia;Child Health Division, Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia;School of Nursing, Charles Darwin University, Darwin, NT, Australia;Department of Paediatrics, Royal Darwin Hospital, Darwin, NT, Australia;Department of Respiratory and Sleep Medicine, Royal Darwin Hospital, Darwin, NT, Australia;Department of Respiratory and Sleep Medicine, Royal Darwin Hospital, Darwin, NT, Australia;College of Medicine and Public Health, Flinders University, Adelaide, SA, Australia;Global and Tropical Health Division, Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia;

关键词: bronchiectasis;    transition plan;    transition;    adult care;    pediatric care;   

DOI  :  10.3389/fped.2023.1184303

 received in 2023-03-11, accepted in 2023-03-30,  发布年份 2023

来源: Frontiers

【 摘 要 】

BackgroundBronchiectasis is increasingly being recognized to exist in all settings with a high burden of disease seen in First Nations populations. With increasing numbers of pediatric patients with chronic illnesses surviving into adulthood, there is more awareness on examining the transition from pediatric to adult medical care services. We undertook a retrospective medical chart audit to describe what processes, timeframes, and supports were in place for the transition of young people (≥14 years) with bronchiectasis from pediatric to adult services in the Northern Territory (NT), Australia.MethodsParticipants were identified from a larger prospective study of children investigated for bronchiectasis at the Royal Darwin Hospital, NT, from 2007 to 2022. Young people were included if they were aged ≥14 years on October 1, 2022, with a radiological diagnosis of bronchiectasis on high-resolution computed tomography scan. Electronic and paper-based hospital medical records and electronic records from NT government health clinics and, where possible, general practitioner and other medical service attendance were reviewed. We recorded any written evidence of transition planning and hospital engagement from age ≥14 to 20 years.ResultsOne hundred and two participants were included, 53% were males, and most were First Nations people (95%) and lived in a remote location (90.2%). Nine (8.8%) participants had some form of documented evidence of transition planning or discharge from pediatric services. Twenty-six participants had turned 18 years, yet there was no evidence in the medical records of any young person attending an adult respiratory clinic at the Royal Darwin Hospital or being seen by the adult outreach respiratory clinic.ConclusionThis study demonstrates an important gap in the documentation of delivery of care, and the need to develop an evidence-based transition framework for the transition of young people with bronchiectasis from pediatric to adult medical care services in the NT.

【 授权许可】

Unknown   
© 2023 Schutz, Fancourt, Chang, Morris, Buckley, Biancardi, Roberts, Cush, Heraganahally and McCallum.