Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities

Frontiers in Public Health

Public Health

Mooyeon Oh-Park¹  Seung Ah Lee²  Bo Ram Lee³  Jongmin Lee⁴  Min Woo Woo⁴  Hyo Eun Kwon⁴  Kyeong Eun Uhm⁴  Eun Joo Kim⁵  Jung Hwan Kim⁵  Heeyoune Jung⁶ 

[1] Burke Rehabilitation Hospital, Montefiore Health System, White Plains, NY, United States;Department of Physical Medicine and Rehabilitation, College of Medicine, Kyung Hee University, Seoul, Republic of Korea;Department of Psychiatry, Cheil Hospital, Seoul, Republic of Korea;Department of Rehabilitation Medicine, Konkuk University Medical Center, Seoul, Republic of Korea;Department of Rehabilitation Medicine, National Rehabilitation Center, Seoul, Republic of Korea;Department of Rehabilitation Medicine, National Traffic Injury Rehabilitation Hospital, Yangpyeong, Republic of Korea;

关键词: caregivers;    caregiver burden;    depression;    preparedness;    quality of life;   

DOI  :  10.3389/fpubh.2023.1153588

 received in 2023-01-29, accepted in 2023-07-14,  发布年份 2023

来源: Frontiers

【 摘 要 】

IntroductionCaregiver preparedness is defined as the perceived preparation of caregivers to care for the physical and emotional needs of the patient.PurposeThis study investigated caregiver preparedness and its influences on caregiver burden, depression, and quality of life (QoL) in caregivers of individuals with disabilities.MethodsWe conducted a multicenter cross-sectional survey study on caregivers caring for patients with disabilities. Sociodemographic characteristics were collected via questionnaires. The Preparedness for Caregiving Scale (PCS), Burden Interview (BI), Center for Epidemiologic Studies Depression Scale (CES-D), and EuroQol-Visual Analogue Scale (EQ-VAS) were administered.ResultsA total of 151 caregivers were enrolled. The mean age of caregivers was 53.7 ± 12.4 years, and 80.8% were female. The majority of participants were the main caregivers of patients with stroke, spinal cord injury, or traumatic brain injury. The mean PCS score was 2.1 ± 0.9, demonstrating significant relationships with BI (r = −0.512, p < 0.001), CES-D (r = −0.622, p < 0.001), and EQ-VAS (r = 0.441, p < 0.001). The CES-D was significantly associated with the PCS after controlling other variables. However, PCS did not show any correlation with the duration of caregiving or amount of time spent per day on caregiving.DiscussionThe clinical implications of this study are that higher caregiver preparedness is a predictor of less caregiver burden and depression, and better QoL. However, preparedness did not increase as the duration or time spent on caregiving was extended. Therefore, efforts to enhance the caregivers’ preparedness are required to reduce caregiver burden and improve health outcomes for both caregivers and patients.

【 授权许可】

Unknown   
Copyright © 2023 Uhm, Jung, Woo, Kwon, Oh-Park, Lee, Kim, Kim, Lee and Lee.