Sociodemographic and clinical characteristics of treated and untreated adults with bulimia nervosa or binge-eating disorder recruited for a large-scale research study

Journal of Eating Disorders

Research

Pratiksha S. Pawar¹  Laura M. Thornton²  Cynthia M. Bulik³  Hunna J. Watson⁴  Emily A. Carrino⁵  Rachael E. Flatt⁶  Christina M. Sanzari⁷  Jenna P. Tregarthen⁸  Stuart Argue⁸ 

[1] Department of Biotechnology, Dr D. Y. Patil Biotechnology and Bioinformatics Institute, Dr. D. Y. Patil Vidyapeeth, Pune, India;Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Department of Nutrition, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Nobels Väg 12A, 171 65, Solna, Stockholm, Sweden;Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Discipline of Psychology, School of Population Health, Curtin University, Perth, Australia;Division of Paediatrics, School of Medicine, The University of Western Australia, Perth, Australia;Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Department of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA;Department of Psychology, State University of New York at Albany, Albany, NY, USA;Recovery Record, Inc, Palo Alto, CA, USA;

关键词: Binge Eating Genetics Initiative (BEGIN);    Binge-eating disorder;    Bulimia nervosa;    Diversity;    Health inequality;    Level of care;    Treatment access;    Treatment gap;    Treatment-seeking;   

DOI  :  10.1186/s40337-023-00846-4

 received in 2023-05-05, accepted in 2023-07-17,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundEating disorders affect millions of people worldwide, but most never receive treatment. The majority of clinical research on eating disorders has focused on individuals recruited from treatment settings, which may not represent the broader population of people with eating disorders. This study aimed to identify potential differences in the characteristics of individuals with eating disorders based on whether they self-reported accessing treatment or not, in order to contribute to a better understanding of their diverse needs and experiences.MethodsThe study population included 762 community-recruited individuals (85% female, M ± SD age = 30 ± 7 years) with bulimia nervosa or binge-eating disorder (BN/BED) enrolled in the Binge Eating Genetics Initiative (BEGIN) United States study arm. Participants completed self-report surveys on demographics, treatment history, past and current eating disorder symptoms, weight history, and their current mental health and gastrointestinal symptoms. Untreated participants (n = 291, 38%) were compared with treated participants (n = 471, 62%) who self-reported accessing BN/BED treatment at some point in their lives.ResultsUntreated participants disproportionately self-identified as male and as a racial or ethnic minority compared with treated participants. Treated participants reported a more severe illness history, specifically, an earlier age at onset, more longstanding and frequent eating disorder symptoms over their lifetime, and greater body dissatisfaction and comorbid mental health symptoms (i.e., depression, anxiety, ADHD) at the time of the study. A history of anorexia nervosa was positively associated with treatment engagement. Individuals self-reporting a history of inpatient or residential treatment exhibited the most severe illness history, those with outpatient treatment had a less severe illness history, and untreated individuals had the mildest illness history.ConclusionsHistorically overlooked and marginalized populations self-reported lower treatment access rates, while those who accessed treatment reported more severe eating disorder and comorbid mental health symptoms, which may have motivated them to seek treatment. Clinic-based recruitment samples may not represent individuals with milder symptoms or racial and ethnic diversity, and males. Community-based recruitment is crucial for improving the ability to apply research findings to broader populations and reducing disparities in medical research.Trial Registration ClinicalTrials.gov NCT04162574 (https://clinicaltrials.gov/ct2/show/NCT04162574).

【 授权许可】

CC BY   
© The Author(s) 2023

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