An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions

Systematic Reviews

Research

Michelle Torok¹  Fiona Shand¹  Tricia Nagel²  Buaphrao Raphiphatthana²  Patj Patj Janama Robert Mills²  Joshua Russell Howard Sells²  Josie Povey²  Michelle Sweet²  Anne Lowell³  Kylie Dingwall⁴ 

[1] Black Dog Institute, University of New South Wales, 2052, Sydney, NSW, Australia;Menzies School of Health Research, Charles Darwin University, Casuarina Campus, Ellengowan Drive, 0810, Casuarina, NT, Australia;Northern Institute, Charles Darwin University, Casuarina Campus, 0810, Casuarina, NT, Australia;Northern Institute, Charles Darwin University, Casuarina Campus, 0810, Casuarina, NT, Australia;Menzies School of Health Research, Charles Darwin University, 10 Grevillia Drive, Alice Springs Campus, NT, Australia;

关键词: Digital mental health;    Indigenous;    Adolescent;    Young adult;    Scoping review;    Participatory;    Efficacy;    Co-design;   

DOI  :  10.1186/s13643-023-02262-w

 received in 2022-06-22, accepted in 2023-05-30,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundIndigenous young people worldwide possess unique protective factors that support wellbeing. However, they experience mental illness at higher rates than their non-indigenous counterparts. Digital mental health (dMH) resources can increase access to structured, timely, and culturally tailored mental health interventions by reducing structural and attitudinal barriers to accessing treatment. The involvement of Indigenous young people in dMH resource development is recommended, however, no guidelines exist on how this can best be facilitated.MethodsA scoping review examining processes to involve Indigenous young people in developing or evaluating dMH interventions was conducted. Studies reported between 1990 and 2023 involving Indigenous young people aged 12–24 years, originating from Canada, the USA, New Zealand, and Australia, in the development or evaluation of dMH interventions were eligible for inclusion. Following a three-step search process, four electronic databases were searched. Data were extracted, synthesized, and described under three categories: dMH intervention attributes, study design, and alignment with research best practice. Best practice recommendations for Indigenous research and participatory design principles derived from the literature were identified and synthesised. Included studies were assessed against these recommendations. Consultation with two Senior Indigenous Research Officers ensured Indigenous worldviews informed analysis.ResultsTwenty-four studies describing eleven dMH interventions met inclusion criteria. Studies included formative, design, pilot, and efficacy studies. Overall, most included studies demonstrated a high degree of Indigenous governance, capacity building, and community benefit. All studies adapted their research processes to ensure that local community protocols were followed and most aligned these within an Indigenous research paradigm. Formal agreements regarding existing and created intellectual property and implementation evaluations were rare. Outcomes were the primary focus of reporting, with limited detailed descriptions of governance and decision-making processes or strategies for managing predictable tensions between co-design stakeholders.ConclusionsThis study identified recommendations for undertaking participatory design with Indigenous young people and evaluated the current literature against these criteria. Common gaps were evident in the reporting of study processes. Consistent, in-depth reporting is needed to allow assessment of approaches for this hard-to-reach population. An emergent framework, informed by our findings, for guiding the involvement of Indigenous young people in the design and evaluation of dMH tools is presented.Trial registrationAvailable via osf.io/2nkc6

【 授权许可】

CC BY   
© The Author(s) 2023

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