Children’s, parents’, and teachers’ experiences of the feasibility of a telerehabilitation intervention for children with acquired brain injury in the chronic phase – a qualitative study of acceptability and participation in the Child In Context Intervention (CICI)

BMC Health Services Research

Research Article

Eli Marie Killi¹  Maria Sandhaug¹  Nina Rohrer-Baumgartner²  Ida M. H. Borgen³  Marianne Løvstad⁴  Ingvil Laberg Holthe⁴  Solveig Laegreid Hauger⁴  Edel Jannecke Svendsen⁵  Shari L. Wade⁶  Line Kildal Bragstad⁷ 

[1] Department of Profession Strategy and Knowledge Brokering, Norwegian Service for Special Needs Education, Oslo, Norway;Department of Research, Sunnaas Rehabilitation Hospital, Nesodden, Norway;Department of Research, Sunnaas Rehabilitation Hospital, Nesodden, Norway;Department of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway;Department of Research, Sunnaas Rehabilitation Hospital, Nesodden, Norway;Department of Psychology, Faculty of Social Sciences, University of Oslo, Oslo, Norway;Department of Research, Sunnaas Rehabilitation Hospital, Nesodden, Norway;Oslo Metropolitan University, Oslo, Norway;CHARM - Research Centre for Habilitation and Rehabilitation Models & Services, Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway;Division of Physical Medicine and Rehabilitation, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Ave, 45229, Cincinnati, OH, USA;University of Cincinnati College of Medicine, Cincinnati, OH, USA;Oslo Metropolitan University, Oslo, Norway;CHARM - Research Centre for Habilitation and Rehabilitation Models & Services, Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway;

关键词: Feasibility;    Children;    Rehabilitation;    Acquired brain injury;    Qualitative research;    School intervention;    Family-centered;    Tele-rehabilitation;   

DOI  :  10.1186/s12913-023-09589-z

 received in 2022-10-14, accepted in 2023-05-16,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundThis is a qualitative feasibility study of the Child in Context Intervention (CICI). The CICI is an individualized, goal-oriented and home-based tele-rehabilitation intervention which targets everyday functioning of children (6–16 years) with acquired brain injury in the chronic stage, and their families, one year or more after insult, who have ongoing challenges (physical, cognitive, behavioral, social and/or psychological). The aim of this study is to better understand how children, parents and teachers experienced participation and acceptability; to develop knowledge about the mechanisms of change, and to explore how the CICI was tailored to the context.MethodsSix families and schools participated in the intervention, which comprised seven tele-rehabilitation sessions in which the child and parent participated, one in-person parent seminar and four digital school meetings. A multidisciplinary team delivered the intervention to 23 participants over a 4- to 5-month period. The intervention involved psychoeducation about targeted acquired brain injury-related problems, such as fatigue, pain, or social challenges. All but one consented to participate in the current digital interview study. The data were analyzed using content analysis.ResultsThe experience of participation and acceptability varied among the children. Attendance was consistently high; the child participants felt mostly listened to and could influence goal setting and strategies. However, engaging and motivating the child participants proved somewhat challenging. The parents found the CICI rewarding, useful and relevant. However, they had different experiences regarding which intervention component they perceived as most helpful. Some argued in favor of the ‘whole intervention’, while others highlighted new knowledge, SMART goals or the school collaboration. The teachers found the intervention acceptable and useful but wanted a better meeting plan. They had difficulties in finding time for meetings, emphasized the involvement of school leaders, and appreciated the digital format.ConclusionsOverall, the intervention was perceived as acceptable, and the participants felt that the various intervention components contributed to improvements. The CICI’s flexibility facilitated tailoring to different contexts based on the children’s functional level. The digital format saved time and provided flexibility regarding the amount of attendance but limited full participation from children with more severe cognitive impairments.Trial registrationClinicalTrials.gov Identifier: NCT04186182.

【 授权许可】

CC BY   
© The Author(s) 2023