Pharmacists are initiators in palliative care for patients with rare diseases

Orphanet Journal of Rare Diseases

Position Statement

M. Dooms¹ 

[1] University Hospitals Leuven, Leuven, Belgium;

关键词: Rare diseases;    Orphan drugs;    Palliative care;    Pharmaceutical care;    Medication review;    Deprescribing;   

DOI  :  10.1186/s13023-023-02765-8

 received in 2022-10-24, accepted in 2023-06-04,  发布年份 2023

来源: Springer

【 摘 要 】

The World Health Organization supports early delivery of palliative care as it reduces unnecessary hospital admissions and the inappropriate use of health care services. A community pharmacist can play a key role in advocating timely access to palliative care. Medication reconciliation must alert them to start communicating with the patient and/or his relatives about refocusing treatment and care as part of palliative and terminal care. Pharmaceutical activities for these patients include dispensing of devices and medicinal products, compounding personalized medication and participating as a member of the Palliative Support Team. Most of the several thousands of rare diseases are caused by genetic defects and up to now have no cure and a late diagnosis.

【 授权许可】

CC BY   
© The Author(s) 2023