Identifying and validating the educational needs to develop a Celiac Self-Care System

BMC Primary Care

Research

Mohammad Hossein Langarizadeh¹  Mostafa Langarizadeh²  Seyed Ali Fatemi Aghda²  Pakzad Rahmati²  Mohammad Javad Sayadi²  Shahram Yousefpour Azari³  Fatemeh Sarpourian⁴ 

[1]Department of Computer Sciences, Faculty of Mathematics Sciences, Shahid Beheshti University, Tehran, Iran

[2]Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran

[3]Department of Internal Medicine, Faculty of Medicine, Shahid Beheshti University of Medical Sciences, Tehran, Iran

[4]Ph.D. Candidate of Health Information Management, Student Research Committee, Department of Health Information Technology, School of Health Management and Information Sciences, Shiraz University of Medical Sciences, Shiraz, Iran

关键词: Minimum data;    Self-care;    Celiac disease;    Data requirements;    Educational needs;    Mobile apps;    Application program;   

DOI  :  10.1186/s12875-023-02076-8

 received in 2023-03-01, accepted in 2023-06-08,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundCeliac disease is a major public health problem in many countries, including Iran. Considering the disease’s exponential spread throughout the world and its risk factors, identifying the educational priorities and minimum data required to control and treat the disease is of great significance.MethodsThe present study was conducted in two phases in 2022. In the first phase, a questionnaire was developed based on the information obtained from a review of the literature. Later, the questionnaire was administered to 12 pundits in the fields of nutrition (n = 5), internal medicine (n = 4), and gastroenterology (n = 3). As a result, the necessary and important educational content was determined for developing the Celiac Self-Care System.ResultsAccording to the experts’ viewpoints, the educational needs of patients were classified into nine categories of demographic information, clinical information, long-term complications, comorbidity, tests, medications, dietary recommendations, general recommendations, technical capabilities as well as 105 subcategories.ConclusionsDue to the increased prevalence of Celiac disease and the lack of an established minimum set of data, determining the required educational information is of great importance at the national level. Such information could be useful in implementing educational health programs to raise the public level of awareness. In the field of education, such contents can be employed in planning new technology based on mobile phones (mobile health), preparing registries, and producing widely used content.

【 授权许可】

CC BY   
© The Author(s) 2023