Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs

BMC Proceedings

Meeting Report

Emily Gardiner¹  Anton R. Miller¹  Vivian Wong² 

[1] BC Children’s Hospital Research Institute, 950 West 28th Avenue, V5Z 4H4, Vancouver, BC, Canada;Division of Developmental Pediatrics, Department of Pediatrics, University of British Columbia, 4480 Oak Street, V6H 3V4, Vancouver, BC, Canada;Sunny Hill Health Centre at BC Children’s Hospital, 4500 Oak Street, V6H 3N1, Vancouver, BC, Canada;

关键词: Neurodisability;    Patient Navigation;    Family Support;    Summit;    Participatory Action Research;    Community Engagement;   

DOI  :  10.1186/s12919-022-00232-z

来源: Springer

【 摘 要 】

Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, including most recently to children with neurodisability and their families. In this context, PN involves the provision of information, advice, education, and emotional support, coordination of services both within and across sectors, and the work is guided by person- and family-centred principles of practice. This manuscript documents the proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs, which took place on January 18 and 19, 2021 and was developed in collaboration with a Provincial Advisory Group. Our Summit brought together over 120 individuals, including researchers, government personnel, service providers, educators, healthcare workers, and family advocates. As part of the event, attendees learned from families with lived experience navigating the British Columbian (BC) service system, from BC Children’s Hospital Research Institute investigators, and from exemplar providers who deliver navigation services in various contexts (e.g., locally, regionally, and provincially). Attendees also participated in various engagement opportunities, and collaboratively identified directions for developing a future community of navigation and related services in BC.

【 授权许可】

CC BY   
© The Author(s) 2022

【 图 表 】

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