A proposal to embed patient and public involvement within qualitative data collection and analysis phases of a primary care based implementation study

Research Involvement and Engagement

Protocol

Caroline Coope¹  Cindy Mann¹  Rachel Johnson¹  Alice Moult²  Krysia Dziedzic²  Nicola Evans²  Carmel McGrath³  Simon Chilcott⁴  Andrew Turner⁵  M. C. Portillo⁶  Kate Lippiett⁶ 

[1] Centre for Academic Primary Care, Bristol Medical School, 39 Whatley Road, Bristol, UK;Impact Accelerator Unit, Keele University, ST5 5BG, Newcastle-Under-Lyme, UK;NIHR Health Protection Research Unit in Behavioural Science and Evaluation, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK;The National Institute for Health and Care Research Applied Research Collaboration West (NIHR ARC West), University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK;Faculty of Health and Applied Sciences, School of Health and Social Wellbeing, University of West England, Bristol, UK;National Institute for Health Research Applied Research Collaboration West (NIHR ARC West), University Hospitals Bristol and Weston NHS Foundation Trust, BS1 2NT, Bristol, UK;National Institute for Health Research Applied Research Collaboration West (NIHR ARC West), University Hospitals Bristol and Weston NHS Foundation Trust, BS1 2NT, Bristol, UK;Centre for Academic Primary Care, University of Bristol, BS8 2PS, Bristol, UK;School of Health Sciences, NIHR ARC Wessex, University of Southampton, Southampton, UK;

关键词: Patient and public involvement;    Qualitative;    Data collection;    Data analysis;   

DOI  :  10.1186/s40900-023-00440-7

 received in 2023-01-24, accepted in 2023-04-24,  发布年份 2023

来源: Springer

【 摘 要 】

BackgroundPatient and public involvement (PPI) is increasingly seen as essential to health service research. There are strong moral and ethical arguments for good quality PPI. Despite the development of guidance aimed at addressing the inconsistent reporting of PPI activities within research, little progress has been made in documenting the steps taken to undertake PPI and how it influences the direction of a study. Without this information, there are minimal opportunities to share learnings across projects and strengthen future PPI practices. The aim of this paper is to present details on the processes and activities planned to integrate PPI into the qualitative research component of a mixed-methods, multi-site study evaluating the implementation of a smart template to promote personalised primary care for patients with multiple long-term conditions.MethodsThis proposal describes the processes and activities planned to integrate PPI into the development and piloting of qualitative data collection tools (topic guides for both practice staff and patients) and a tailored data analysis package developed for PPI members incorporating broad concepts and specific methods of qualitative data analysis.DiscussionOutputs relating to PPI activity may include clear, concise and suitably worded topic guides for qualitative interviews. Piloting of the topic guides via mock interviews will further develop researchers’ skills including sensitisation to the experiences of participants being interviewed. Working with PPI members when analysing the qualitative data aims to provide reciprocal learning opportunities and may contribute to improving the overall rigour of the data analysis. The intent of publishing proposed PPI activities within this project is to inform the future delivery of high quality PPI.

【 授权许可】

CC BY   
© The Author(s) 2023

【 图 表 】

Fig. 2

Fig. 2