Development and assessment of the feasibility of a Zika family support programme: a study protocol

Wellcome Open Research

article

Antony Duttine¹  Tracey Smythe¹  Miriam Ribiero Calheiro de Sá²  Silvia Ferrite³  Maria Elisabeth Moreira²  Hannah Kuper¹ 

[1] London School of Hygiene & Tropical Medicine;Instituto Fernandes Figueira;Department of Hearing and Speech Sciences, Federal University of Bahia

关键词: Zika;    disability;    microcephaly;    early intervention;    congenital Zika syndrome;    family;    caregiver;    Brazil;   

DOI  :  10.12688/wellcomeopenres.15085.1

学科分类：内科医学

来源: Wellcome

【 摘 要 】

The Zika virus outbreak in Brazil in 2015 affected thousands of people. Zika is now known to cause congenital malformations leading to impairments and developmental delays in affected children, including Congenital Zika Syndrome (CZS). Children with CZS have complex care needs. Caregivers require significant levels of support to meet these needs, and there are large gaps in healthcare services. This study aims to develop, pilot and assess the feasibility and scalability of a community-based Family Support Programme for caregivers of children with CZS. The programme is adapted from the Getting to Know Cerebral Palsy (GTKCP) programme for the context of CZS in Brazil. GTKCP is a 10-session programme held with 6-10 caregivers in the local community. It includes practical, educational, peer-support and psychosocial aspects, which aim to improve confidence and capacity to care for a child with CP, and quality of life and empowerment of caregivers. The research project contains four components:Ascertaining need for the caregiver programme: a mixed-methods approach that included two literature reviews, interviews with key stakeholders in country, and incorporation of findings from the Social and Economic Impact of Zika study.

【 授权许可】

CC BY