Supporting families managing childhood eczema: developing and optimising eczema care online using qualitative research

The British journal of general practice: the journal of the Royal College of General Practitioners

article

Katy Sivyer¹  Emma Teasdale²  Kate Greenwell²  Mary Steele²  Daniela Ghio³  Matthew J Ridd⁴  Amanda Roberts⁵  Joanne R Chalmers⁶  Sandra Lawton⁷  Sinead M Langan⁸  Fiona Cowdell⁹  Emma Le Roux^1,10  Sylvia Wilczynska²  Hywel C Williams⁶  Kim S Thomas⁶  Lucy Yardley^1,11  Miriam Santer²  Ingrid Muller² 

[1] Department of Psychology, University of Southampton, Southampton, lecturer, University of Portsmouth;University of Southampton;University of Manchester, Manchester, research fellow, University of Southampton;University of Bristol;Nottingham.;University of Nottingham;Rotherham NHS Foundation Trust;London School of Hygiene and Tropical Medicine;Birmingham City University;University of Hertfordshire;University of Bristol, Bristol, professor of health psychology, University of Southampton

关键词: atopic eczema;    caregivers;    family practice;    internet-based intervention;    paediatric dermatology;    qualitative research;   

DOI  :  10.3399/BJGP.2021.0503

学科分类：卫生学

来源: Royal College of General Practitioners

【 摘 要 】

Background Childhood eczema is often poorly controlled owing to underuse of emollients and topical corticosteroids (TCS). Parents/carers report practical and psychosocial barriers to managing their child’s eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited.Aim To develop an online behavioural intervention to help parents/carers manage and co-manage their child’s eczema.Design and setting Intervention development using a theory-, evidence-, and person-based approach (PBA) with qualitative research.Method A systematic review and qualitative synthesis of studies (n = 32) and interviews with parents/carers (n = 30) were used to identify barriers and facilitators to effective eczema management, and a prototype intervention was developed. Think-aloud interviews with parents/carers (n = 25) were then used to optimise the intervention to increase its acceptability and feasibility.Results Qualitative research identified that parents/carers had concerns about using emollients and TCS, incomplete knowledge and skills around managing eczema, and reluctance to transitioning to co-managing eczema with their child. Think-aloud interviews highlighted that, while experienced parents/carers felt they knew how to manage eczema, some information about how to use treatments was still new. Techniques for addressing barriers included providing a rationale explaining how emollients and TCS work, demonstrating how to use treatments, and highlighting that the intervention provided new, up-to-date information.Conclusion Parents/carers need support in effectively managing and co-managing their child’s eczema. The key output of this research is Eczema Care Online for Families, an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.

【 授权许可】

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