Questionnaire-based service evaluation of the efficacy and usefulness of SEREN: a structured education programme for children and young people diagnosed with type 1 diabetes mellitus

BMJ Open Quality

article

Rashmi Sarah D'Souza¹  Matthew Ryan²  Esther Hawkes³  Claire Baker⁴  Yvonne Davies⁵  Judith R-Screen⁶  Jonathan Price⁷  Rebekah Pryce⁸  Nirupa A D'Souza⁹ 

[1] Institute for Women's and Children's Health , King's College London;Department of Paediatrics , Swansea Bay University Health Board;School of Medicine , University of Southampton;Department of Nutrition and Dietetics , Aneurin Bevan University Health Board, Headquarters, St Cadoc's Hospital;Department of Paediatrics , Hywel Dda University Health Board;Department of Paediatrics , Betsi Cadwaladr University Health Board;Improvement Cymru , Public Health Wales;Consultant Endocrinologist , Department of Paediatrics, Noah’s Ark Children’s Hospital;Department of Paediatrics , Princess of Wales Hospital

关键词: paediatrics;    patient education;    diabetes mellitus;    evaluation methodology;    patient reported outcome measures;   

DOI  :  10.1136/bmjoq-2021-001337

学科分类：药学

来源: BMJ Publishing Group

【 摘 要 】

Objectives To evaluate the usefulness and effectiveness of a new structured education module for children with type 1 diabetes: Structured Education Reassuring Empowering Nurturing (SEREN) ‘Diabetes at Diagnosis’.Design Retrospective questionnaire-based service evaluation.Setting 12/14 paediatric diabetes centres across Wales took part.Participants Children diagnosed with type 1 diabetes 1 year before (pre-SEREN group) and 1 year after the introduction of SEREN (post-SEREN group) were selected using a national diabetes register.Resource ‘Diabetes at Diagnosis’ delivers structured education to empower children and families with self-management of type 1 diabetes.Evaluation Primary outcomes were patient-reported effectiveness and user-friendliness of the educational resources and quality of life (PedsQL). Age-appropriate child and parent questionnaires were provided. Clinical outcomes included glycated haemoglobin (HbA1c) at 6 and 12 months, service engagement and diabetes-related hospital admissions in the first year.Results 89/106 responded pre-SEREN and 108/115 post-SEREN, with no demographic differences at diagnosis. Parent scores for educational package evaluation significantly improved post-SEREN, with a non-significant trend towards improved results in children. PedsQL scores were similar. There was no change in HbA1c overall. Subgroup analyses at 12 months showed a trend towards a lower HbA1c in key stage 1–2 (62 vs 58 mmol/mol, p=0.06) and increased HbA1c in key stage 3–4 (56 vs 66 mmol/mol, p=0.009). There were no differences in hospital admissions or missed clinic appointments.Conclusions This is an evaluation of the only standardised type 1 diabetes structured education programme in use for children throughout Wales. This module improved parent-reported outcomes and showed a non-significant trend towards improved usefulness in children, without a difference in a PedsQL scores overall. Ongoing evaluation of the cohort who received subsequent SEREN modules may show the long-term benefit of the programme.

【 授权许可】

CC BY-NC|CC BY|CC BY-NC-ND