Health-related quality of life and health literacy in patients with systemic mastocytosis and mast cell activation syndrome

Orphanet Journal of Rare Diseases

Research

Tobias Jürgen Schmidt¹  Rupert Conrad²  Julia Sellin³  Martin Mücke³  Gerhard J. Molderings⁴ 

[1] Center for Rare Diseases Bonn (ZSEB), University Hospital Bonn, Bonn, Germany;Department of Psychosomatic Medicine and Psychotherapy, University Hospital Bonn, Bonn, Germany;Department of Psychosomatic Medicine and Psychotherapy, University Hospital Münster, Münster, Germany;Institute for Digitalization and General Practice, University Hospital Aachen, Aachen, Germany;Center for Rare Diseases Aachen (ZSEA), University Hospital Aachen, Aachen, Germany;Institute of Human Genetics, University Hospital Bonn, Bonn, Germany;

关键词: Systemic mastocytosis (ORPHA:2467);    Mast cell activation syndrome;    Health related quality of life;    Health literacy;   

DOI  :  10.1186/s13023-022-02439-x

 received in 2021-08-12, accepted in 2022-07-14,  发布年份 2022

来源: Springer

【 授权许可】

CC BY   
© The Author(s) 2022. corrected publication 2023

【 图 表 】

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