Patient priority setting in HIV ageing research: exploring the feasibility of community engagement and involvement in Tanzania

Research Involvement and Engagement

Research

Aloyce Kisoli¹  Grace Anderson-Saria¹  Jane Rogathi²  Sarah Urasa²  Ssenku Safic³  Ellisiv Clarke⁴  Louise Robinson⁴  Susan Moloney⁴  Stella-Maria Paddick⁵  Richard Walker⁶ 

[1] Anderson Memorial Rehabilitation and Care Organisation (AMRCO), Moshi, Tanzania;Kilimanjaro Christian Medical University College, Moshi, Tanzania;Mount Meru Hospital, Arusha, Tanzania;Newcastle University, Campus for Ageing and Vitality, Westgate Road, NE4 6BE, Newcastle Upon Tyne, UK;Newcastle University, Campus for Ageing and Vitality, Westgate Road, NE4 6BE, Newcastle Upon Tyne, UK;Gateshead Health NHS Foundation Trust, Gateshead, UK;Newcastle University, Campus for Ageing and Vitality, Westgate Road, NE4 6BE, Newcastle Upon Tyne, UK;Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, North Shields, UK;

关键词: HIV;    HIV-associated neurocognitive disorders (HAND);    Older adults;    Sub-Saharan Africa;    Community engagement and involvement (CEI);    Patient and public involvement (PPI);    Research priority setting;    Research prioritisation;   

DOI  :  10.1186/s40900-022-00409-y

 received in 2022-08-01, accepted in 2022-12-23,  发布年份 2022

来源: Springer

【 摘 要 】

ObjectiveThe chronic complications of ageing with HIV are not well studied in sub-Saharan Africa (SSA) where general healthcare resources are limited. We aimed to collaborate with individuals living with HIV aged ≥ 50 years, and community elders (aged ≥ 60 years) living with non-communicable diseases in the Kilimanjaro region of Tanzania in a health research priority-setting exercise.MethodsWe conducted structured workshops based on broad questions to aid discussion and group-based patient priority setting, alongside discussion of the feasibility of future community research engagement. Participant priorities were tallied and ranked to arrive at core priorities from consensus discussion.ResultsThirty older people living with HIV and 30 community elders attended separate priority setting workshops. Both groups reported motivation to participate in, conduct, and oversee future studies. In this resource-limited setting, basic needs such as healthcare access were prioritised much higher than specific HIV-complications or chronic disease. Stigma and social isolation were highly prioritised in those living with HIV.ConclusionsCommunity engagement and involvement in HIV and ageing research appears feasible in Tanzania. Ageing and non-communicable disease research should consider the wider context, and lack of basic needs in low-income settings. A greater impact may be achieved with community involvement.

【 授权许可】

CC BY   
© The Author(s) 2023

【 图 表 】

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