“They go hand in hand”: a patient-oriented, qualitative descriptive study on the interconnectedness between chronic health and mental health conditions in transition-age youth

BMC Health Services Research

Research

Susan Samuel¹  Megan Patton¹  Andrew S. Mackie²  Kathleen C. Sitter³  Karina Pintson³  Katelyn Greer³  Brooke Allemang³  Marcela Farias³  Keighley Schofield³  Gina Dimitropoulos⁴  Scott B. Patten⁵ 

[1] Department of Pediatrics, Cumming School of Medicine, University of Calgary, 3300 Hospital Drive NW, T2N 4N1, Calgary, AB, Canada;Department of Pediatrics, Stollery Children’s Hospital, 84400 112 Street NW, T6G 2B7, Edmonton, AB, Canada;Faculty of Social Work, University of Calgary, MacKimmie Tower, 400-B3, 2500 University Drive, NW, T2N 1N4, Calgary, AB, Canada;Faculty of Social Work, University of Calgary, MacKimmie Tower, 400-B3, 2500 University Drive, NW, T2N 1N4, Calgary, AB, Canada;Mathison Centre for Mental Health Research & Education, University of Calgary, 3280 Hospital Drive NW, T2N 4Z6, Calgary, AB, Canada;Mathison Centre for Mental Health Research & Education, University of Calgary, 3280 Hospital Drive NW, T2N 4Z6, Calgary, AB, Canada;Department of Psychiatry, Cumming School of Medicine, University of Calgary, 3300 Hospital Drive NW, T2N 4N1, Calgary, AB, Canada;

关键词: Transition to adult care;    Transition readiness;    Youth;    Chronic health condition;    Mental health;    Qualitative;   

DOI  :  10.1186/s12913-022-09002-1

 received in 2022-09-01, accepted in 2022-12-22,  发布年份 2022

来源: Springer

【 摘 要 】

BackgroundTransition-age youth (TAY) with chronic health conditions frequently experience co-occurring mental health conditions. However, little is known about the perspectives of TAY with co-occurring diagnoses preparing to exit pediatric health and mental health services. Research is needed to understand the impact of a mental health condition on transition readiness and self-management in TAY with chronic health conditions.MethodsTAY (aged 16–20 years) with co-occurring chronic health and mental health conditions were recruited in Alberta, Canada. Nine semi-structured individual interviews were completed by phone or videoconference, and transcribed verbatim. Guided by qualitative description, we analyzed the data using thematic analysis in partnership with five young adults with lived experience in the health/mental health systems.ResultsParticipants shared their experiences living with simultaneous physical and mental health concerns and preparing for transition to adult care. Our analysis revealed three overarching themes: 1) “they’re intertwined”: connections between chronic health and mental health conditions in TAY, 2) impact of mental health on transition readiness and self-management, and 3) recommendations for service provision from the perspectives of TAY.ConclusionsOur findings highlighted the myriad ways in which physical and mental health are connected as TAY prepare for service transitions using specific examples and powerful metaphors. TAY endorsed the importance of providers discussing these connections in routine clinical care. Future research should involve co-designing and evaluating educational material addressing this topic with diverse TAY, caregivers, and service providers.

【 授权许可】

CC BY   
© The Author(s) 2022

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