Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

Frontiers in Pediatrics

article

Valentina Biagioli¹  Giuseppina Spitaletta¹  Valeria Kania²  Rachele Mascolo³  Orsola Gawronski¹  Annachiara Liburdi¹  Giulia Manzi¹  Michele Salata⁴  Ercole Vellone⁵  Emanuela Tiozzo¹  Immacolata Dall’Oglio¹ 

[1] Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital;Department of Paediatric Emergency, Bambino Gesù Children’s Hospital;Pediatric Semi-Intensive Care Area/Unit, Bambino Gesù Children’s Hospital;Rheumatology Unit, Bambino Gesù Children’s Hospital;Department of Biomedicine and Prevention, University of Rome “Tor Vergata

关键词: self-care;    self-management;    instruments;    chronic disease;    pediatric;    adolescent;    young adult;    parent;   

DOI  :  10.3389/fped.2022.832453

学科分类：社会科学、人文和艺术（综合）

来源: Frontiers

【 摘 要 】

Children and young adults (CYAs) with chronic conditions need to engage in self-care to improve their quality of life. This study aimed to retrieve the literature on instruments to assess self-care in CYAs living with chronic conditions and evaluate the psychometric proprieties of the instruments retrieved. A systematic literature review was conducted on six databases to identify peer-reviewed papers that described or used an evaluation instrument of self-care in CYAs with chronic conditions. Twenty-three articles describing 11 instruments of self-care were identified. Five instruments (45.45%) were developed for specific diseases, while six (54.54%) for various chronic illnesses. Most of the instruments were focused on treatment adherence within self-care maintenance (i.e., behaviors to maintain illness stability), excluding the monitoring of clinical parameters or the management of exacerbations. This review provides an overview of available instruments that measure self-care in CYAs with chronic conditions, which health professionals could use for patient education.

【 授权许可】

CC BY