Patient and Physician Perspectives on Systemic Sclerosis–Associated Interstitial Lung Disease

Clinical Medicine Insights: Circulatory, Respiratory and Pulmonary Medicine

Perspective

Meilin Young¹  Erica Rabold¹  Tariq J Cheema¹  Ashley N Barbieri¹  Virginia D Steen²  Nancy Baldwin³ 

[1] Division of Pulmonary and Critical Care Medicine, Allegheny General Hospital, Pittsburgh, PA, USA;Division of Rheumatology, Department of Medicine, School of Medicine, Georgetown University, Washington, DC, USA;Scleroderma Foundation, Danvers, MA, USA;

关键词: Interstitial lung disease (ILD);    patient;    perspectives;    physician;    scleroderma/systemic sclerosis (SSc);   

DOI  :  10.1177/1179548420913281

 received in 2019-09-18, accepted in 2020-02-23,  发布年份 2020

来源: Sage Journals

【 摘 要 】

Systemic sclerosis–associated interstitial lung disease is challenging to diagnose and treat. Patients and physicians can perceive the disease differently and have different views on its management. Communication issues between them can lead to suboptimal disease management. Despite a clear need for improvement in the speed and accuracy of the diagnostic workup, the heterogeneity of clinical symptoms renders the process long and challenging. When considering treatment options, physicians may be more focused on the evidence supporting a particular treatment or on a patient’s pulmonary function test results, as opposed to the realities of the patient’s difficulties with symptoms or the psychosocial effects of systemic sclerosis–associated interstitial lung disease. Disease management plans should be determined by the patient’s own preferences and goals as well as the objective clinical situation. Health care providers must consider their patients as partners on a journey in which treatment decisions are reached jointly. This review will focus on the perspectives of physicians and patients in relation to the diagnosis and management of systemic sclerosis–associated interstitial lung disease. Similarities and differences in these perspectives will be identified, and strategies for achieving optimal disease management will be proposed.

【 授权许可】

CC BY-NC   
© The Author(s) 2020

【 图 表 】

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Figure 2.