Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review

Journal of Personalized Medicine

Giuseppe Plazzi¹  Rachele Mariani²  Barbara Dioni³  Paola Corsano³  Alessandro Musetti³  Tommaso Manari³  Christian Franceschini⁴  Cinzia Raffin⁵  Giulia Bravo⁵  Dagmara Dimitriou⁶  Gianluca Esposito⁷ 

[1] Department of Biomedical, Metabolic and Neural Sciences, University of Modena and Reggio Emilia, 41125 Modena, Italy;Department of Dynamic and Clinical Psychology, Sapienza University of Rome, 00185 Rome, Italy;Department of Humanities, Social Sciences and Cultural Industries, University of Parma, Borgo Carissimi 10, 43121 Parma, Italy;Department of Medicine and Surgery, University of Parma, 43121 Parma, Italy;Fondazione Bambini e Autismo Onlus, 33170 Pordenone, Italy;Sleep Education and Research Laboratory, Department of Psychology and Human Development, UCL-Institute of Education, London WC1H 0AA, UK;Social and Affective Neuroscience Lab, Psychology Program-SSS, Nanyang Technological University, Singapore 639818, Singapore;

关键词: autism spectrum disorder;    quality of life;    parents;    intervention;    systematic review;   

DOI  :  10.3390/jpm11090894

来源: DOAJ

【 摘 要 】

Previous research has examined several parental, child-related, and contextual factors associated with parental quality of life (QoL) among parents with a child or an adolescent with autism spectrum disorders (ASD); however, no systematic review has examined the relationship between parental QoL and parental involvement in intervention. To fill this gap, a systematic review was conducted using four electronic databases and checked reference lists of retrieved studies. Records were included in the systematic review if they presented original data, assessed parental QoL, and involvement in intervention for children or adolescents with ASD, were published in peer-reviewed journals between 2000 and 2020, and were written in English. Among the 96 screened full-texts, 17 articles met the eligibility criteria. The selected studies included over 2000 parents of children or adolescents with ASD. Three categories of parental involvement (i.e., none, indirect, direct) were identified, which varied across studies, although most had direct parental involvement. The results from this review show that increased parental involvement in the intervention for children or adolescents with ASD may be one way to promote their QoL. However, further research specifically focused on parental involvement during the intervention for children and adolescents with ASD is warranted.

【 授权许可】

Unknown