Caregiving, care burden and awareness of caregivers and patients with dementia in Asian locations: a secondary analysis

BMC Geriatrics

Kee Hyung Park¹  Hee-Jin Kim²  Yong S. Shim³  San Jung⁴  Kyunghun Kang⁵  SangYun Kim⁶  Christopher Chen⁷  Zhen Hong⁸  Jacqueline C. Dominguez⁹  Yu-Te Lin^1,10  Leung-Wing Chu^1,11 

[1] Department of Neurology, College of Medicine, Gachon University Gil Hospital;Department of Neurology, College of Medicine, Hanyang University;Department of Neurology, Eunpyeong St. Mary’s Hospital, College of Medicine, The Catholic University of Korea;Department of Neurology, Hallym University Kangnam Sacred Heart Hospital;Department of Neurology, School of Medicine, Kyungpook National University;Department of Neurology, Seoul National University College of Medicine & Clinical Neuroscience Center, Seoul National University Bundang Hospital;Department of Pharmacology, Yong Loo Lin School of Medicine, National University of Singapore;Huashan Hospital Affiliated to Fudan University;Institute for Neurosciences, St. Luke’s Medical Center;Kaohsiung Veterans General Hospital;Queen Mary Hospital, Department of Medicine, The University of Hong Kong;

关键词: Alzheimer’s disease;    Asia;    Burden;    Caregivers;    Dementia;    Awareness;   

DOI  :  10.1186/s12877-021-02178-x

来源: DOAJ

【 摘 要 】

Abstract Background This study investigated the differences in caregiver activity, caregiver burden, and awareness of both caregivers and patients with Alzheimer’s disease (AD) across different Asian locations. Methods This was a secondary analysis of a multi-national cohort study that aimed to assess caregiver activity and caregiver burden using the Caregiver Activity Scale (CAS) and Zarit Burden Interview (ZBI), respectively. Patients’ awareness of their dementia diagnosis was assessed by asking the following yes/no question: “Do you have dementia?” Caregivers’ awareness of the patient’s dementia diagnosis was assessed by asking the following yes/no question: “Does your patient have dementia?” Results In total, 524 caregivers of patients with AD from China, Hong Kong, South Korea, the Philippines, Singapore, Thailand, and Taiwan participated. The CAS and ZBI score were significantly different across most locations (p < 0.001 and p = 0.033, respectively). Overall, 56.6% of caregivers and 37.5% of patients had awareness of the dementia diagnosis, and the proportion of patients and caregivers with awareness were also different between each location (all, p < 0.001). Conclusions Caregiving, caregiver burden, and the awareness of caregivers and patients were different across many Asian locations. With understanding of cultural differences, further public education on dementia could help increase the awareness of patients and caregivers and reduce caregiver burden. Trial registration ClinicalTrials.gov , NCT02262975 . Registered 13 October 2014,

【 授权许可】

Unknown