A quality of life questionnaire for adolescents with cerebral palsy: psychometric properties of the Bengali CPQoL-teens

Health and Quality of Life Outcomes

Mohammad Muhit¹  Sabrina Wadud¹  Eamin Heanoy¹  Rosalie Power²  Tasneem Karim²  Gulam Khandaker²  Nadia Badawi²  Rahena Akhter³ 

[1] Asian Institute of Disability and Development, University of South Asia;Discipline of Child and Adolescent Health, Faculty of Medicine and Health, University of Sydney;School of Dentistry, Faculty of Medicine and Health, University of Sydney;

关键词: Cerebral palsy;    Health-related quality of life;    Bangladesh;    Cerebral palsy quality of life teens;    Disability;    Adolescent;   

DOI  :  10.1186/s12955-019-1206-x

来源: DOAJ

【 摘 要 】

Abstract Background Quality of life (QoL) and health-related quality of life (HRQoL) measurement in low and middle-income countries of people with cerebral palsy (CP), the major cause of childhood physical disability, is essential to assess the impact of interventions and inform policies that best improve people’s lives. The purpose of this study was to cross-culturally translate and psychometrically validate the Cerebral Palsy Quality of Life-Teens (CPQoL-Teens) self- and proxy-report questionnaires for application with adolescents with CP in Bangladesh. Method The CPQoL-Teens questionnaires were translated to Bengali using forward and backwards cross-cultural translation protocols. The questionnaires were interviewer administered to adolescents and their primary caregivers, identified through the Bangladesh Cerebral Palsy Register. Feasibility, sensitivity, internal consistency, content, concurrent and construct validity were assessed. Results One hundred fifty four adolescents with CP (10 to 18y; mean 15y 1mo SD 1y 8mo; 31.2% female) participated. Feasibility, sensitivity and internal consistency of both self- and proxy-report questionnaires was excellent; nil missing scores except ‘school wellbeing’ which was associated with non-school attendance (48.4 to 74.7%); floor and ceiling effect ≤13.6%; Cronbach’s alpha 0.77 to 0.94. Instrument validity was good; confirmatory factor analysis reflected five of the seven original instrument dimensions. CPQoL-Teens correlated to Kidscreen-27 on most dimensions (r = 0.176 to 0.693, p < 0.05); minimal difference in known groups was observed by mental health status (p < 0.05) although could be accounted for by homogeneity of mental health problems in the sample. Conclusion The CPQoL-Teens self- and proxy report questionnaires successfully translated to Bengali and showed excellent feasibility and strong psychometric properties confirming suitability to assess indicators of HRQoL among adolescents with CP in Bangladesh.

【 授权许可】

Unknown