Decision making and support available to individuals considering and undertaking electroconvulsive therapy (ECT): a qualitative, consumer-led study

BMC Psychiatry

Anthony Tuite¹  Scott Rutter¹  Lisa Gomez¹  Karen Wells¹  Sarah Jacek²  Andrew Jones²  Graeme Halliday²  Joanna Ho²  Hassan Mehdi²  Megan Still²  Nicola Hancock³  Justin Newton Scanlan³ 

[1] New Horizons Inc;Sydney Local Health District, Mental Health Services;The University of Sydney, Faculty of Health Sciences;

关键词: Electroconvulsive therapy;    Consumer-led research;    Service user research;    Qualitative methods;    Patient experience;   

DOI  :  10.1186/s12888-018-1813-9

来源: DOAJ

【 摘 要 】

Abstract Background Electroconvulsive therapy (ECT) is one of the most controversial treatments in psychiatry. This controversy and diverse and often strongly held opinions can make decision making processes around ECT more complex. Method This consumer-led project explored the experiences of individuals who had received ECT in terms of the information they received, their experience of ECT and suggestions for ways that decision making processes and experiences of ECT can be improved. Interviews were conducted by consumer researchers who had also received ECT and transcripts were analysed using constant comparative techniques. Results Seventeen individuals participated. Four overarching categories were identified from participant interviews: Information matters; Preparation and decisions before ECT; Experience of ECT; and Suggestions for improvement. Most participants suggested that more information was required and that this information should be made available more regularly to support decision making. Additional suggestions included greater involvement of family and friends (including having a family member or friend present during the ECT procedure), opportunities to gain information from individuals who had received ECT and more support for managing memory and cognitive side effects. Conclusion This study provides valuable consumer-provided insights and recommendations for psychiatrists and mental health clinicians working within ECT clinics and with consumers considering or preparing for ECT.

【 授权许可】

Unknown