Quality of life in Maltese adults with congenital heart disease: a second look – An APPROACHIS substudy

International Cardiovascular Forum Journal

Maayke Sluman¹  Edward Callus²  Maryanne Caruana³  Bengt Johansson⁴  Malin Berghammer⁵  Victor Grech⁶  Alexandra Soufi⁷  Corina Thomet⁸  Silke Apers⁸  Philip Moons⁸  Koen Luyckx⁹  Werner Budts^1,10  Adrienne H. Kovacs^1,11  Katrine Eriksen^1,12  Mikael Dellborg^1,13 

[1] Academic Medical Center, Department of Cardiology, Amsterdam, the Netherlands;Clinical Psychology Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy;Department of Cardiology, Mater Dei Hospital, Birkirkara Bypass MSD 2090 Malta;Department of Clinical Medicine and Public Health, Umeå University, Umeå, Sweden;Department of Health Science, University West, Trollhättan;Department of Paediatrics, University of Malta Medical School, MSD 2090 Malta;Hospital Louis Pradel, Lyon, France;KU Leuven - University of Leuven, Department of Public Health and Primary Care, B-3000 Leuven, Belgium;KU Leuven - University of Leuven, School Psychology and Child and Adolescent Development, B-3000 Leuven, Belgium;KU Leuven - University of Leuven, University Hospitals Leuven, Department of Cardiovascular Sciences, Division of Congenital and Structural Cardiology, B-3000 Leuven, Belgium;Knight Cardiovascular Institute, Oregon Health & Science University, Portland (OR), US;Oslo University Hospital, Rikshospitalet, Oslo, Norway;The Sahlgrenska Academy at University of Gothenburg, Institute of Medicine, Gothenburg, Sweden;

关键词: Congenital Heart Defects;    Quality of Life;    Patient Reported Outcome;   

DOI  :  https://doi.org/10.17987/icfj.v12i0.465

来源: DOAJ

【 摘 要 】

Background A first quality of life (QOL) study among Maltese adults with congenital heart disease (ACHD) in 2016 found no significant differences when compared to the general population. The aims of the present study were to (1) compare QOL between Maltese and other European ACHD patients and (2) investigate medical predictors (i.e. number of surgical/non-surgical interventions, heart failure, arrhythmias, pacemaker/implantable cardioverter-defibrillator, cardiac hospitalisation during preceding year, follow-up frequency, other medical conditions, mood/anxiety/psychiatric disorders) of QOL in Maltese patients. Methods Data collected during “Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease–International Study” (APPROACH-IS) was used. QOL was measured using linear analog scale (LAS) and Satisfaction With Life Scale (SWLS). QOL in 109 Maltese and 1510 European participants was compared. Multivariable logistic regression was used to test the predictive value of medical factors on QOL in Maltese patients. Results There were no significant differences in QOL between the two cohorts [mean LAS Malta 80.51 (95% CI 77.96,83.07) vs. European 79.43 (95% CI 78.65,80.21) (p=0.776); mean SWLS Malta 26.00 (95% CI 24.94,27.06) vs. European 26.26 (95% CI 25.95,26.57) (p=0.288)] and no significant differences when cohorts were divided by gender and age. Only a mood/anxiety/other psychiatric disorder significantly predicted poorer QOL on both scales in Maltese patients (LAS (ß=-.389, p<0.001), SWLS (ß=-.352, p=0.001)). Conclusions Maltese ACHD patients have a good QOL comparable to that of European counterparts. Mood, anxiety and other psychiatric disorders can negatively impact Maltese patients’ QOL. Better access to clinical psychology services should be ensured.

【 授权许可】

Unknown