Impact of inflammatory bowel disease on daily life: an online survey by the Korean Association for the Study of Intestinal Diseases

Intestinal Research

¹  Chang Hwan Choi²  Hye Kyoung Song³  Sung-Ae Jung³  Chang Mo Moon³  Tae Oh Kim⁴  Soo-Young Na⁵  Won Moon⁶  Young Sun Kim⁷  Hyun Gun Kim⁸  Kang-Moon Lee⁹  Suk-Kyun Yang^1,10  Soo Jung Park^1,11 

[1] ;Department of Internal Medicine, Chung-Ang University College of Medicine, Seoul, Korea.;Department of Internal Medicine, Ewha Womans University School of Medicine, Seoul, Korea.;Department of Internal Medicine, Haeundae Paik Hospital, Inje University College of Medicine, Busan, Korea.;Department of Internal Medicine, Jeju National University School of Medicine, Jeju, Korea.;Department of Internal Medicine, Kosin University College of Medicine, Busan, Korea.;Department of Internal Medicine, Seoul National University Healthcare System Gangnam Center, Seoul, Korea.;Department of Internal Medicine, Soonchunhyang University College of Medicine, Seoul, Korea.;Department of Internal Medicine, St. Vincent's Hospital, The Catholic University of Korea College of Medicine, Suwon, Korea.;Department of Internal Medicine, University of Ulsan College of Medicine, Seoul, Korea.;Department of Internal Medicine, Yonsei University College of Medicine, Seoul, Korea.;

关键词: Inflammatory bowel disease;    Crohn disease;    Colitis, ulcerative;    Quality of life;    Surveys and questionnaires;   

DOI  :  10.5217/ir.2017.15.3.338

来源: DOAJ

【 摘 要 】

Background/Aims: Inflammatory bowel disease (IBD) is a chronic disabling gastrointestinal disorder that diminishes the quality of life of the affected individuals. Limited data are available regarding the impact of IBD on the daily life of Koreans.Methods: Self-administered, computer-aided, internet-based questionnaires were distributed to members of a Korean patient organization for IBD from March to April 2013, by the Korean Association for the Study of Intestinal Diseases.Results: A total of 599 patients with IBD (387 with Crohn's disease [CD] and 212 with ulcerative colitis [UC]) were enrolled. The majority of patients (81%) expressed feelings of fatigue, weakness, and being worn out in their daily lives during times of flare; this percentage was reduced to 61% during remission. Respondents were absent from work or school for an average period of 18 days because of illness, within the first 6 months; the majority of respondents (64%) felt stressed about their absence. Forty-six percent of the respondents reported having received unfair comments at work, or having suffered discrimination. Forty-seven percent of the respondents felt that IBD had negatively affected their income and earnings. Compared with patients with UC, those with CD reported a more frequent negative impact of IBD on work, or more economic burden. More than half of the respondents (61%) reported that IBD had prevented them from making or keeping friends.Conclusions: IBD significantly impacts daily life, including work, education, and social relationships. Treatment that addresses the full spectrum of life of a patient would be more effective.

【 授权许可】

Unknown