The supportive meaning and its relation with the ethical limits in ethnographic research with chronically ill children

Zero-a-seis

Katerina Volcov¹ 

[1] Universidade Federal de São Paulo;

关键词: crianças;    etnografia;    fenomenologia;    dermatite atópica;   

DOI  :  10.5007/1980-4512.2019v21n40p415

来源: DOAJ

【 摘 要 】

Through the theoretical and practical references of ethnography, from a phenomenological perspective, this article presents reflections on the ethical limits of research with chronically ill children. From the presentation of an outpatient narrative of a child affected by atopic dermatitis, the concept of supportive meaning is developed as a requisite for parrhesia in order to establish a genuine exchange between researcher and informant. In this case, in addition to an ethical listening, the researcher must consider that the current state of the ill child requires a different perception and care from those related to the development of ethnographic research in other contexts.

【 授权许可】

Unknown