Organization of Medical Care and Drug Supply for Patients with Osteogenesis Imperfecta in the Republic of Bashkortostan

Pediatričeskaâ Farmakologiâ

V. A. Malievskiy¹  O. A. Malievskiy¹  E. P. Pervushina²  G. M. Galieva²  R. Z. Akhmetshin²  F. M. Bairamgulov³  A. K. Mardanova³  N. I. Romanova⁴  A. A. Bakirov⁴ 

[1] Bashkir State Medical University;Republican Children’s Clinical Hospital;Republican Perinatal Center;The Republic of Bashkortostan Ministry of health;

关键词: osteogenesis imperfecta;    children;    medical care;    drug supply.;   

DOI  :  10.15690/pf.v13i5.1643

来源: DOAJ

【 摘 要 】

Osteogenesis imperfecta is a group of rare hereditary diseases of connective tissue, which are based on a defective collagen formation. The main focus of the osteogenesis imperfecta drug therapy is a cyclical use of bisphosphonates (pamidronic acid). The article presents the procedure of health care and drug supply organization for children with that disease, including the development of the regulatory framework.

【 授权许可】

Unknown