Accessibility of information on patients' and family members' end‐of‐life wishes in advance care planning

Nursing Open

Päivi Korhonen¹  Kaija Saranto²  Elina Haavisto³  Anne Kuusisto³ 

[1] Department of General Practice Turku University HospitalUniversity of Turku Turku Finland;Department of Health and Social Management University of Eastern Finland Kuopio Finland;Department of Nursing Science University of Turku Finland Turku Finland;

关键词: advance care planning;    advance directives;    electronic health records;    palliative care;    patient preference;    qualitative research;   

DOI  :  10.1002/nop2.1081

来源: DOAJ

【 摘 要 】

Abstract Aim To describe healthcare professionals' accessibility and transfer of patients' and family members' end‐of‐life wishes in ACP to the palliative care unit. Design The study used a qualitative descriptive study design. Methods Purposive sampling was used. The data (N = 33) were collected through interviews with physicians, registered nurses, practical nurses and social workers. The data were analysed by inductive content analysis. Results Two main categories emerged. Patients' and family members' end‐of‐life wishes documentation in relation to changing information needs was described in relation to patients' condition and care context. Transfer of patients' and family members' end‐of‐life wishes to palliative care unit included written and verbal communication. Results showed lack of implementation of ACP early, lack of implementation about the holistic interpretation of ACP into medical notes and lack of transferability of ACP into documenting systems impacting on accessibility and realization for the patient and family members at the end‐of‐life.

【 授权许可】

Unknown