Dementia with Lewy bodies research consortia: A global perspective from the ISTAART Lewy Body Dementias Professional Interest Area working group

Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring

the ISTAART Lewy body dementias Consortia Working Group¹  Simon J.G. Lewis²  Dag Aarsland³  Miguel Germán Borda³  Joseph P.M. Kane⁴  Yong Ji⁵  Huali Wang⁶  Fabrizia D'Antonio⁷  Richard Camicioli⁸  Laura Bonanni⁹  Jing Zhang^1,10  Claudio Babiloni^1,11  Manabu Ikeda^1,12  Yueyi Yu^1,13  Agustin Ibañez^1,14  James B. Leverenz^1,15  Bradley F. Boeve^1,16  Rukmini Mridula Kandadai^1,17 

[1] ;Brain and Mind Centre School of Medical Sciences University of Sydney Sydney New South Wales Australia;Centre for Age‐Related Medicine (SESAM) Stavanger University Hospital Stavanger Norway;Centre for Public Health Queen's University Belfast Belfast UK;China National Clinical Research Center for Neurological Disease Beijing Tiantan Hospital Capital Medical University Beijing China;Dementia Care and Research Center Peking University Institute of Mental Health (Sixth Hospital) Beijing China;Department of Human Neurosciences Sapienza University of Rome Rome Italy;Department of Medicine University of Alberta Canada;Department of Neuroscience Imaging and Clinical Sciences University G. d'Annunzio of Chieti‐Pescara Chieti Italy;Department of Pathology The First Affiliated Hospital and School of Medicine Zhejiang University Hangzhou China;Department of Physiology and Pharmacology “Vittorio Erspamer,” Sapienza University of Rome Rome Italy;Department of Psychiatry Osaka University Graduate School of Medicine Osaka Japan;Innovation Center for Neurological Disorders Department of Neurology Xuanwu Hospital Capital Medical University Beijing China;Latin American Institute for Brain Health (BrainLat) Universidad Adolfo Ibanez Santiago Chile;Lou Ruvo Center for Brain Health Neurological Institute Cleveland Clinic Cleveland Ohio USA;Mayo Clinic Rochester Rochester Minnesota USA;Nizam's Institute of Medical Sciences Hyderabad India;

关键词: collaboration;    consortia;    dementia with Lewy bodies;    global strategy;    Lewy body dementia;   

DOI  :  10.1002/dad2.12235

来源: DOAJ

【 摘 要 】

Abstract Dementia with Lewy bodies (DLB) research has seen a significant growth in international collaboration over the last three decades. However, researchers face a challenge in identifying large and diverse samples capable of powering longitudinal studies and clinical trials. The DLB research community has begun to focus efforts on supporting the development and harmonization of consortia, while also continuing to forge networks within which data and findings can be shared. This article describes the current state of DLB research collaborations on each continent. We discuss several established DLB cohorts, many of whom have adopted a common framework, and identify emerging collaborative initiatives that hold the potential to expand DLB networks and diversify research cohorts. Our findings identify geographical areas into which the global DLB networks should seek to expand, and we propose strategies, such as the creation of data‐sharing platforms and the harmonization of protocols, which may further potentiate international collaboration.

【 授权许可】

Unknown