The Impact of COVID-19 Pandemic on Children with Pulmonary Arterial Hypertension. Parental Anxiety and Attitudes. Follow-Up Data from the Polish Registry of Pulmonary Hypertension (BNP-PL)

Journal of Clinical Medicine

Anna Mazurek-Kula¹  Katarzyna Ostrowska¹  Joanna Pluzanska¹  Joanna Kwiatkowska²  Magdalena Bazgier²  Jaroslaw Meyer-Szary²  Bozena Werner³  Barbara Wojcicka-Urbanska³  Zbigniew Kordon⁴  Kinga Przetocka⁴  Alina Rzeznik-Bieniaszewska⁵  Waldemar Bobkowski⁵  Rafal Surmacz⁵  Grzegorz Kopec⁶  Elzbieta Skiba⁷  Jacek Kusa⁷  Karolina Zygielo⁷  Agata Michalczyk⁸  Pawel Banaszak⁸  Malgorzata Zuk⁹  Anna Migdal⁹ 

[1] Cardiology Department, Polish Mother’s Memorial Hospital-Research Institute, 93-338 Lodz, Poland;Department of Paediatric Cardiology and Congenital Heart Defect, Medical University of Gdansk, 80-210 Gdansk, Poland;Department of Paediatric Cardiology and General Paediatrics, Medical University of Warsaw, 02-091 Warsaw, Poland;Department of Paediatric Cardiology, Medical College, Jagiellonian University, 30-663 Krakow, Poland;Department of Paediatric Cardiology, Poznan University of Medical Sciences, 60-572 Poznan, Poland;Pulmonary Circulation Centre, Department of Cardiac and Vascular Diseases, Faculty of Medicine, Medical College Jagiellonian University, John Paul II Hospital in Krakow, u. Pradnicka 80, 31-202 Krakow, Poland;Regional Specialist Hospital-Research and Development Centre in Wroclaw, Paediatric Cardiology Department, 51-124 Wroclaw, Poland;Silesian Centre for Heart Diseases, Department of Congenital Heart Disease and Paediatric Cardiology, 41-800 Zabrze, Poland;The Children’s Memorial Health Institute, 04-730 Warsaw, Poland;

关键词: coronavirus;    COVID-19;    pandemic;    pulmonary hypertension;    pediatric registry;    psychosocial;   

DOI  :  10.3390/jcm10081640

来源: DOAJ

【 摘 要 】

The COVID-19 pandemic has impacted healthcare systems worldwide. Little is known about the impact of the pandemic on medical and psycho-social aspects of children with rare diseases such as pulmonary arterial hypertension and their parents. The study is based on children registered in The Database of Pulmonary Hypertension in the Polish Population and a parent-reported survey deployed during the first 6 months of the pandemic. The questionnaire consisted of six question panels: demographic data, fear of COVID-19, General Anxiety Disorder-7 (GAD-7), social impact of pandemic, patients’ medical status, and alarming symptoms (appearance or exacerbation). Out of 80 children registered, we collected 58 responses (72.5% response rate). Responders (parents) were mostly female (n = 55; 94.8%) at a mean age of 40.6 ± 6.9 years. Patients (children) were both females (n = 32; 55%) and males with a mean age of 10.0 ± 5.1 years. Eleven (19%) children had symptoms of potential disease exacerbation. Eight parents (72.7%) decided for watchful waiting while others contacted their GPs or cardiologists (n = 6; 54.5%). Three children had to be hospitalized (27.3%). Most planned hospitalizations (27/48; 56.2%) and out-patient visits (20/35; 57.1%) were cancelled, delayed, or substituted by telehealth services. Among the participating parents, the study shows very high levels of anxiety (n = 20; 34.5%) and concern (n = 55; 94.8%) and the need for detailed information (52; 89.6%) regarding COVID-19 and medical service preparedness during the pandemic. The COVID-19 pandemic has influenced child healthcare and caused high levels of anxiety among parents.

【 授权许可】

Unknown