Quality of life measurement instruments for headache and migraine disorders

Applied Medical Informatics

George MANIU¹  Ionela MANIU²  Bogdan NEAMȚU³ 

[1] Faculty of Sciences, “Lucian Blaga” University of Sibiu, Doctor Ion Raţiu Str., no. 5-7, 550012 Sibiu, Romania.;Faculty of Sciences, “Lucian Blaga” University of Sibiu, Doctor Ion Raţiu Str., no. 5-7, 550012 Sibiu, Romania.Research Center in Informatics and Information Technology, Faculty of Sciences, “Lucian Blaga” University of Sibiu, Dr. Ion Raţiu Str., no. 5-7, 550012 Sibiu, Romania.Research and Telemedicine Center in Neurological Diseases in Children, Pediatric Clinical Hospital Sibiu, George Bariţiu Str., no. 3, 550178 Sibiu, Romania.;Research and Telemedicine Center in Neurological Diseases in Children, Pediatric Clinical Hospital Sibiu, George Bariţiu Str., no. 3, 550178 Sibiu, Romania.Faculty of Medicine, “Lucian Blaga” University of Sibiu, Lucina Blaga Str., no. 2A, 550169 Sibiu, Romania.Faculty of Engineering, “Lucian Blaga” University of Sibiu, Emil Cioran Str., no. 4, 550025 Sibiu, Romania.;

关键词: Quality of Life;    Headache;    Migraine;    Patient-Reported Outcome Measurements;    Electronic Health Record;   

DOI  :  

来源: DOAJ

【 摘 要 】

Introduction: The present study aims to achieve a comprehensive review of existing patient-reported outcome measurement instruments (PROMs) used for assessing the impact of headache disorders and migraine on patients health-related quality of life. Materials and Methods: We conducted a systematic search of published literature in PubMed, Medline electronic databases and specific journals. Literature search was supplemented by a manual search of retrieved articles, performed to identify additional relevant articles about the topic. We also used Mendeley, Google Scholar and ResearchGate to access any other sources and full text versions of articles. Results: The quality of life measurement instruments identified after the literature review are: MSQ (Migraine-Specific Quality of Life Questionnaire), SF (Short-Form Health Survey), HUI (Health Utilities Index), EQ-5D (EuroQol-5 Dimensions). Articles which are based on real data from clinical practice and are using patient-reported outcome measures (PROMs), were considered to synthesize different real-word practices/approaches/patterns/results used by researchers in the context of quality of life of patients with headache and migraine disorders. Conclusion: Quality of life related PROMs in paper format and especially their electronic version are valuable instruments that facilitate and improve data collection and patient use (less data entry errors, complete and accurate data, easy to administrate/management). Their multiple advantages and their integration into EHRs are also discussed.

【 授权许可】

Unknown