It takes a village: Influencing policy and practice to prevent alcohol use in pregnancy and promote better outcomes for individuals living with Fetal Alcohol Spectrum Disorder

International Journal of Population Data Science

Tracy Reibel¹  Hayley Passmore²  Heather Jones³  Rochelle Watkins⁴  Elizabeth Elliott⁴  Martyn Symons⁴  Jane Halliday⁵  Narelle Mullan⁶  Tracey Tsang⁶  Neil Reynolds⁶  Astrid Chapman⁶  Amy Finlay-Jones⁶  Natalie Kippin⁶  Carol Bower⁶ 

[1] Department of Paediatrics, University of Melbourne, Victoria, 3010, Australia;Reproductive Epidemiology, Genetics, Murdoch Children's Research Institute, The Royal Children's Hospital, Victoria, 3052, Australia;Sydney Children's Hospital Network, Kids Research, Westmead, NSW, Australia, 2145;Telethon Kids Institute, Nedlands, Western Australia, Australia, 6009;The University of Sydney, Discipline of Child and Adolescent Health, Faculty of Medicine and Health, Westmead, NSW, Australia, 2145;FASD Research Australia Centre of Research Excellence, Australia;

关键词: Fetal alcohol spectrum disorder;    Policy;    Research Translation;    Consumer Involvement;    Alcohol;   

DOI  :  10.23889/ijpds.v6i3.1703

来源: DOAJ

【 摘 要 】

Fetal Alcohol Spectrum Disorder (FASD) is a neurodevelopmental disorder caused by exposure to alcohol in utero. It has pervasive, lifelong impacts and is recognised as a major public health concern in many countries where alcohol is used. The FASD Research Australia Centre of Research Excellence (CRE) was funded by the National Health and Medical Research Council to generate and translate evidence to address prevention, diagnosis, and management of FASD in Australia. The current paper describes the approach to policy and practice impact taken by our CRE, including our stakeholder engagement processes and the key principles that underlie our approach. We provide examples of policy and practice influence in FASD prevention, diagnosis and management that have been achieved over the past five years and discuss challenges that are routinely faced in the translation of our work.

【 授权许可】

Unknown